Hi, I was diagnosed with Vulval cancer end of January 2026, waiting for the op to remove it and 1 lymph node. Obviously scared and anxious, but hoping to feel better after reading your journeys getting through it. Sending hugs to you all.
Sorry to hear of your diagnosis and hope you don’t have too long to wait for your surgery. I had my operation in June 2023 and all my cancer was removed witc clear lymph nodes too. No further treatments were needed. Please ask any questions you have and I will do my best to answer you. Please keep in touch.
Thanks for your reply. Glad yours was successful and now C free. Just had a call to say my op is 23 March, 8 weeks from diagnosis. I was originally told it would be 4-6 weeks, so now anxious I have to wait longer. They're removing 2 lymph nodes, 1 each side too. I'm probably more worried about getting lymphedema (I'm 61) as that sounds nasty (also removing all the C). How long did it take to recover after the op and could you walk much? Thank you xx
I was 73 when I had my op. it took much longer to Han I hoped, probably about 8 weeks before my walking was back to normal as the area rubbed. As it was in summer it was as ok to go without underwear, as I was advised. Uncomfortable sitting and I still sit on a cushion.
Oh no, poor you and still uncomfortable after all this time, takes some adjustments I bet?
I've got some long skirts and dresses so I don't have to wear nickers.
I'm expecting lots of pain and discomfort. Thinking of buying a hula hoop cushion for comfort, have you got one?
Did you have much swelling?
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