My Mum

Hi Russ,

I am sorry to hear about your mums vulval cancer diagnosis. 

I wish I had some advice, but unfortunately I don’t. I guess I would be patient and see if she comes round to the idea of having treatment. Other than that I would just be there for her. 

Sorry, I know my reply isn’t overly helpful, but I do hope thinge become easier for you soon. 

I am here if you would  like to chat or have any questions. 

Take care,

Many thanks,It's just so difficult for people around her .

Hi Russ, I am also sorry to hear of you Mum's diagnosis. Does she say why she is refusing any sort of treqtment or will she not

talk about it?. I was diagnosed with vulval cancer nearly 3 years ago now and I had an operation followed by 6 weeks of daily radiotherepy and 6 weekly chemo sessions and so far everything has been a success. I too was scared of the treatment and more scared of the after effects such as hair loss, sickness etc but I was one of the lucky ones I had no side effects apart from a bit of soreness from the radiotherepy (which cleared up with cream). If she was assigned a McMillan Nurse when she was diagnosed perhaps she would talk to your mum about the pros and cons of the treatment and the long term prognosis. i know everyone is different to their approach to cancer and how to deal with it but hopefully your mum will open up soon. Take care.

Hi Russ

So sorry to hear about your Mum's diagnosis. I was very lucky that I was diagnosed early and I just needed an operation. I have now been cancer free for 10 years.

I know how scared your Mum must be feeling right now and it is hard to open up to people about this type of cancer. Do you know what stage her cancer is and what treatment has been offered.

If it would help your Mum to talk to someone who has had this cancer I would be happy for her to private message me.

Big hugs to you both

Cazzi x

Hi Cazzi and Tufty1954

Thank you for your Kind help the only information on the condition is Radical vulvectomy and bilateral groin but the size of an Apple, I'm just hoping to get a Macmillan nurse to her as soon as possible so she can open up to her.The C word in her life time was always her biggest fear as with many of us all.

Once again thanks you.

Russ x

Hi Russ

Really hope you get a nurse to speak to your mum soon. I totally understand what you mean. As soon as you hear the C word it fills you with panic. This is also a rare cancer so its not really talked about a lot. I wonder if your Mum's reluctance to have treatment is down to the fact that things haven't been explained to her properly. As somebody else said all you can do at the moment is be there for her and support her.

Here for you if you need any help or advice. 

Lots of love to your Mum and hope she gets some help soon

Cazzi x

Hi Russ,

I have just seen your post.

Horrid you have to write this. I am 5 weeks post op for vulva cancer.  I am a Mum and Grandmother and do understand completely how your Mum feels.  Its not an easy thing to talk about.  It was impossibly difficult to tell my Son & Daughter.  I still struggle with the word cancer. 

Try not to Harrass your Mum. 

If you are an only child ask if you can go with her to talk to the consultant.

I  hope things work out xx

Hi Balcony,

Firstly thanks for your Kind words,Yes basically I'm taking each day as it comes and hoping she opens up to me,But Thank you for sharing your blog I've found this a great help and wishing you all the best with your post op.

Hope all goes well for you too.

Russ xx

Hi tufty,

Many thanks for your help and glad your doing okay take care.

Russ x