Hi, just joined today,
I'm 53
At the very start of my diagnosis of vulva cancer.
Having surgery at the begining of December, would have been sooner but recently had covid 19.
Never felt so alone, I've a huge family but still feel as no one really understands as its not breast or lung cancer.
Scared beyond belief, when asked do you have any questions my brain empties with me shaking my head.
I was sexually abused a a child and now I suffer with mental health issues so is this just me or does anyone else feel this way.
Sorry if this seems insignificant as i know you're all really suffering,
Love to you all
Hi Chegma,
Welcome to the online community, although I m sorry you find yourself here.
It sounds like a difficult time for you. What with having COVID 19 recently, your fear and feelings of loneliness. I don’t think you are alone in feeling the way you do. I can remember feeling scared and that no one could truly understand.
I also remember how frustrating it was to have no questions whilst in an appointment, only to have several when I got home. I found it useful to jot down my questions between appointments, so I could remember to ask some of them at least. There were often new ones after an appointment, so I would jot them down for next time or email them to my nurse. Do you have a nurse? I found them very supportive and great for answering my questions between appointments.
I am so sorry to hear you were sexually abused as a child. Although I wasn’t sexually abused I do suffer with anxiety and that was made worse through my diagnosis. So although I could never truly understand what you’re going through, I can empathise with the mental health side of things and say you’re not alone in finding the diagnosis difficult.
I don’t feel that any of what you said was insignificant. You are not alone in finding the diagnosis difficult and we are all here for you.
I am here if you would like to chat or have any questions. You may also find speaking to someone on the Macmillan support line helpful. They are really nice and have a wealth of knowledge. The phone number is below if you would like to give them a call.
I wish you the very best of luck with your surgery and like I said I am here if I can help in any way.
Take care,
