Hi. I’m new to this site. Already, it’s been informative and validating. Nobody in my life really understands. I get either pity or avoided. I was diagnosed with VIN 3 on Feb 19, 2019, and am going to have a wide local excision. I had a lesion on my vulva that was biopsied and here I am with VIN 3. I was passively told my diagnosis and about surgery via email from my Dr. She made it seem completely routine. Then, I started looking it up online. This is far from routine. Locally, there’s a vulvar cancer specialist. Not in my insurance plan. My Dr wouldn’t even consider giving me a referral (It’s all about $$$). After reading all I have, and now being scared as hell, I changed insurance and now have an appt at the specialty hospital. I’m much more comfortable about having professionals in this area as my Drs. They can’t see me until April, tho. As it was, my first Dr wasn’t going to operate until May! She would only give vague answers. Like: I asked what is the size of removal, will I be disfigured? All she did was say 2cm and I’d look fine. She just minimized the whole thing. She told me I shouldn’t worry about it, and I should just do it and get on with my life. Is she kidding? My life is never going to be the same. Every story I read is more horrible than the previous. I began this process thinking I’m going to have a small bump removed. Now I’m reading about vulvectomies. Castration. Repeated surgeries. CANCER. I cry every day. I can’t sleep. So depressed. I am still in pain from the biopsy. A donut helps with driving/sitting at desk. But I can’t sit for any length of time. I know it’s going to be 100x worse after surgery. As it is, I haven’t worn pants since December (1st acknowledgement that this was “something” by dr). I am 50 and single. I feel like that’s all I’ll ever be, now. Telling my family, few friends was hard. Thinking about my future and disfigurement, and what if this is cancer. Just waiting for my first appt after diagnosis is an eternity! It’s become an eternity of reading about the nightmare that will ensue after they butcher up my body. I also have PTSD from childhood trauma. That aspect makes things even more complicated. I’m just hoping that here, I can connect with others going thru this or have recovered. Is there ever recovery?? Seems like it just comes back over and over for so many people. How do u explain to acquaintances why u can’t drive the carpool or sit at your desk or watch your kid’s dance performances? How do you learn to breathe again and not let the unknown eat you alive? Thanks for letting me vent.
Jewels Voilet,
im 50 in July going through the same had my Wide Local Incision where it was 2cm down from surface of the Vulva n 3cm diameter. Only 2 Weeks Post Op it returned rxactly the same Size! Doctor i saw 8 Weeks after the surgery said She had Never seen VIN3 so aggressive & to try this Adalat Cream? To me they mess about until in becames Invasive in My Eyes.
Let me know how you get on, im supposed to feel burning (sign to say its working apparently) with this Cream, only used it once as only just had it & felt nothing! Great Start
Sparkle.1 
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