Hi, I've been diagnosed with a recurrence of VIN III having had laser surgery for it in spring 2019. The re-diagnosis happened in June 2020 so - didn't get much time VIN free. Just over a year and it had reappeared.
I was and am gutted :( It seems utterly bizarre to have to go through all that again so soon - if it is soon. I've been waiting since last June, but COVID has meant sitting on a waiting list. I'm told VIN is apparently slow-growing, though I'm a bit uneasy just letting things run on. How long can it be left, before it progresses? Has anyone had experience of that?
I just want to have the op now, strange as it seems, so that it can be done and dealt with. And maybe next time I'll get more time VIN free. Live in hope!
Hi
I'm sorry to read that your VIN has come back after just a year and I can understand how disappointed you must be at the thought of having to face surgery again so soon.
I can see why you want to know what slow growing means and Macmillan have this information about VIN where you'll see it says "Vulval intraepithelial neoplasia (VIN) is a skin condition affecting the vulva. It may develop into cancer after many years." Hopefully that answers your question but, if not, you could post it in the ask a nurse section of the online community and one of the specialist nurses will reply within 2 working days.
When you have a minute, it would be great if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
