Hello. I was diagnosed with TNBC December 2023. Have had 6 months of chemo and immunotherapy, lumpectomy, 10 rounds of radiotherapy. Unfortunately I had no pathological response to the 6 months of treatment so I have a high risk of reoccurrence. For that reason I’m now on a further 6 months of oral chemo and immunotherapy to mop up any tiny cancers cells that are hanging about ready to pounce. I’m on IV infusion of Pembro every 3 weeks and oral Capecitabine for 2 weeks with one week off. My current treatment is through a clinical trial, I wasn’t randomised to the new drug but the oncologist choice.
Is anyone else on tropion3 trial. I know only around 32 in the UK are taking part. Wanted to know if anyone is on the new treatment and how they are doing. I was keen to be randomised to the new drug and was very upset when I wasn’t. I am grateful to have the opportunity to have further preventative treatment. Also if anyone is on the Capecitabine, what dose are you on. I’m on 2150 am and again pm. Really struggling with mouth trouble and hand/foot syndrome. Fatigue is continuous.
Hi Darlek and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and was diagnosed with TNBC in April 2022. I'm not on the TROPION 3 trial, or taking capecitabine, but noticed that your post hadn't had any replies yet. Responding to you will 'bump' your post back to the top of the discussion list again.
I've done a search in the breast cancer groups but unfortunately couldn't find anyone who'd posted about being on the same trial as you. However, there are lots of posts from people on capecitabine and you can read their posts by clicking here.
While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
