Hello - new diagnosis

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Hi everybody, I'm new to this forum.  Diagnosed recently with TNBC - tumour was in my armpit and it took a while to be diagnosed as breast cancer, Stage 2A.  I'm now on what I believe is the standard treatment of Paclitaxel, Carboplatin (weekly) and Pembrolizumab (every three weeks).  They took out the lump in May thinking it was benign (despite two biopsies), which pathology showed was wrong, so I've already had surgery, but they are planning to do more in six months' time.  Very keen to share experiences here as I'm still rather in shock over this.  So far the side effects of treatment haven't been too bad, except that the steroid is really affecting my sleep. 

  • Hi there, welcome to the forum. I'm one of the champions here and I hope you find us a friendly bunch.  You've found the right group for your specific cancer, but I also wanted to mention that the Breast Cancer group is quite an active one, so worth also checking in there for support and advice.

    The steroids can be a real challenge can't they?  My own chemo was 3 weekly, so for me they wore off after a couple of days and the wide effects were not so bad after the first week, but I guess it's different for weekly chemo.  I hope you’re managing ok. Best wishes 

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  • Hi, I am recently new on here too. I was diagnosed with stage 3 TNBC last year in June and did the same 12 weeks of that treatment and then a different chemo every 3 weeks for 12 weeks aswell. The side effects and fatigue set in about 2 days after and then started to feel a little better just before the next treatment. Hopefully your side effects won't get worse, just listen to your body and rest when you need to. I still can't believe I have had this happen to me either, I wish you luck for the rest of your treatment 

  • Thanks so much for your kind welcome!  I'll certainly check out the Breast Cancer group as well.  I've slept better the last night or two so am hopefully catching up.  And I'd prefer to be sleepness than sick - the drugs do seem to be warding off the nausea so far (fingers crossed).

  • Thank you!  Did you find that side effects got better or worse as things went on? And was it different with the second lot of chemo (I will be moving to EC after the first 12 weeks)?

  • My side effects were always the same, fatigue or stomach troubles. Had a few different ones with the second and felt a bit worse. Just make sure to take or use whatever you need to deal with the side effects and discuss them with your oncologist.  Best wishes on your journey too