Finding the wait so hard - sobbed at GP today

Hi BBVP welcome to the forum. You are turning yourself inside out looking for answers as to why me that we all ask. However, there are no definitive answers and Cancer doesn't really care much where it strikes and it often has an unknown cause. It's OK to have a cry and it's OK to scream and shout as well. I suspect that coming off the HRT has more to do with the mood fluctuations and sweats I expect feeling awful with a cold is just the perfect storm!!!! It's not east to keep positive and some days it's harder than others so cut yourself some slack. Sometimes there are no answers so please don't keep beating yourself up. Sending some huge big hugs your way for now..

Thankyou. Coming off the HRT is definitely making it all much harder. Your msg made me feel much calmer. Thank you 

I am sorry you are going through this. Did they know the cancer was TNBC when they advised you to come off HRT? Is it worth challenging it - TNBC is not hormone driven? I wasn’t in quite the same situation as I was only using topical oestrogen (Vagifem) but they had absolutely no issue with me continuing it. 

So sorry to hear you are having a hard time, sadly I think most of us have been through the journey of emotions you are on. I have grade 3 TNBC and asked if I had caused it by taking HRT I was told no as it has no raised hormones. The waiting for me was horrendous and after we had a plan for treatment it has been far better, still good days and bad but nothing on the scale it was at diagnosis. Hold on there and be kind to yourself, it’s ok and totally normal to feel how you do. Keep busy and try and just take one day at a time. My husband said God gives you enough strength for today and will give you more tomorrow to fight what ever you need to do that day. This helped me. Best of luck, your doing great x 

Thank you. Feeling much better and now my cold has gone I am able to get outside and distract myself. Only a few days to go before I see the surgeon. 

Hi - I am relieved to see that this has been caught so early, 6mm. I am stage 2, grade 3, 35mm. I was told to come off HRT immediately and after 9 years have gone back to the night sweats, anxiety and insomnia that caused me to take HRT in the first place. It did not cause the cancer but it is a risk they want to eliminate for later on believe. It is hard to be positive at first. I was in meltdown for over 2 weeks, I have never experienced shock like it - my mild asthma went mad, throat dry and heart fluttery. There is so much to organise and sort out with hospital appointments alongside telling work, family, friends etc. We were meant to fly to Cambodia this Thursday for 18 days to trying to cancel that too. It is overwhelming and it is exhausting. However, you do come through it. I feel more settled and have acceptance now. My port was fitted yesterday and 6 months of Chemo start on Monday. I just want to get going. You need your friends and family around to support you. My husband needs support too. Take each day at a time. I write a to-do list for the next day which includes a little walk and some rest. Take care, once the shock goes you kick into action