Newly diagnosed with TNBC

Hey, 

Everyone is different with the effects. 
Can get a mixture of things and it is a bit like roulette of what you get I found. 

Eat little and often and keep hydrated.

Good luck with everything xx

Thanks that is encouraging. Hope all goes well for you too. 

Are you having EC? 
If so, that’s the one I’m on at the min and I’ve been constipated. Not so bad with the fatigue on this one. 

However, I wasn’t great on the 12 weekly if you’re having paclitaxel and carboplatin. 

Some people are okay on one and bad on the other and then the opposite - if you get me. 

I have got cycle 7 on Wednesday so I am coming to the end - I know it probably doesn’t feel like it but when I got half way through, it seems to have gone a bit quicker with the second batch of chemo. 

Make sure you rest when your body says rest  xx

Hi I’m on carboplatin and Paclitaxel at the moment (with Pembrolizumab). I’m due to have EC later on. You’ve gone a long way, it is hard to imagine at the moment. All the best for Wednesday. I’m back for more on Thursday. ️

Are you going every week at the minute? 
Pac and carbo affected my liver quite a bit  so I did have a few delays and a couple omitted. 

But like I say, everyone is different and I hope your body handles it better than mine did ha! 

You will get there. Just keep going. I know it’s draining xx

Hi yes every week at the moment. I hadn’t realised there could be liver problems - that’s quite worrying. Is there anything that helps reduce that risk?  Thanks so much for responding - it really does help to chat with people who are going through it. 

Going every week I found was mentally draining. EC is every 3 weeks so your body gets chance to recover. 
It can cause an inflamed liver called hepatitis - nothing to reduce the risk (I asked this!). But, to help it, they prescribed steroids. This was for 5 weeks and after, my liver returned to normal.

I was told by a couple of doctors I know that even though the liver can be affected, it is one organ which can quickly recover without any damage if managed. So I wasn’t worried after hearing this. 

Eat lots of potassium and magnesium. I have been low in these previously/currently. 

I had quite a few issues with my bloods when on pac/carbo but haven’t had any with EC yet - touch wood! 

I experienced loose stools often on pac/carbo but you’ve mentioned you’ve been constipated.

Just have to take what effect we get and manage it the best we can. 

Of course. I’ve tried being as honest with the areas spoken about. If there is anything else, please go ahead. 
I fully agree - you speak to friends and family but they don’t really understand xx

Thanks that’s very useful to know.