Hello - long term with breast cancer but new to triple negative

Hi CEFG

Welcome to the forum and I am sorry to hear that you have been battling cancer for a number of years and that you now have triple negative breast cancer.

Wishing you the best of luck with your treatment for triple negative.

Best wishes

Daisy53

Hello.

I'm a 1997 girl too.

Mine decided to show its face again in 2019 after I went to the doctors with a cough. Since then I've had courses of ribociclib, paclitaxel and now capecitabine. I'm currently on cycle 2 and am tolerating the tablets far better than the IV (so far) The only thing that's just started is hard and foot but I'm moisturising and hoping to keep it at bay.

Good luck with your journey and just remember how far you've come. We can do this  

Thank you for this.  We go back a while!!  Interesting that you had paclitaxel first.  Do you mind letting me know how were you on that, and why you moved to capecitabine?

Thank you

We do go back a long way. Things have definitely changed since then.

I feel lucky. Ive seen my daughter grow up, get married and now I'm a grandmother. Not everyday is easy but I have a lot to be thankful for.

I had paclitaxel weekly for 10 months. There are lots of different doses and frequencies though. It wiped me out initially but I did seem to get a little better as the weeks went by. The first 2 scans were stable but a third showed further growth so my meds were changed to capecitabine tablets  I'm coping with these so much better being more active and the brain fog has cleared too.

I'm not sure why I was given Paclitaxel first, I went with their suggestion. 

Good luck with your journey. 

Thanks 

As you say - we are lucky.  My children similarly are grown up and I have recently been blessed with two wonderful grandchildren - albeit in Texas.  That is why I have opted to try capecitabine first - so I can still get over there to see them.

Keep well.

x

Keep well too and hope you get to Texas soon. I didn't realise you could get travel insurance whilst on chemo without it costing a fortune. Do you mind if I ask who you've used?  Thank you 

That is the big problem.  You can't get travel insurance to cover everything.  I have tried and failed.  The insurance I travel on doesn't cover "pre-existing conditions". It is the only way I can go.  I keep my fingers crossed and won't travel if I am not feeling well.  That is why I am so concerned about the change in my medication regime.  I don't want to travel until I feel comfortable on it.

Hi CEFG and Bamboozled 

I hope you don't mind me butting in but I noticed your conversation about travel insurance.

I don't know if you're aware but there's a travel insurance forum for cancer patients within the online community to help people find reasonably priced travel insurance when they have a cancer diagnosis.

To join, just click on the link I've created and then, once you've joined, take a look through the threads on the first page there called 'Recommended Travel Insurance' and 'Recommended travel insurance 2023-24'. 

You'll find lots of recommendations there so it's best to go through and make a list before sitting down to phone the companies recommended.

Sending best wishes to you both

Thank you. I'll have a look 

Try Insurancewith - it’s a specialist insurer founded by someone who had cancer. I have metastatic TNBC and had no issues getting full cover at reasonable cost.