Trodelvy

Kev61 10 days ago

2 replies
26 subscribers
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My wife is on her second round of trodelvy seems to be managing not to bad fatigue and constipation being her main problems

My question is how have others managed and how long may she be on this treatment ie for the rest of her life

She has slight spread in her collar bone lymph nodes I think it's still classed as local as not in other organs but was told its inoperable don't know why ?

Any feedback would be welcome

A very worried husband

Kevin

Daisy53 8 days ago

Hi Kev61

While I don't have any answer for you I noticed that you haven't had any replies yet so I thought I'd reply to you anyway. I notice that you are a member of the breast cancer forum. I suggest that you put your question into that forum as well as it's a busier forum than this one.

Best wishes

Daisy53

Coddfish 8 days ago

Your wife’s medical team are the only people who can advise why it’s not operable.

Trodelvy is a relatively new treatment (approved Aug 22) and its approval is specifically for treating unresectable triple negative advanced breast cancer after 2 or more other therapies have been tried. Unfortunately you won’t find too many other people who are being treated with it. TNBC isn’t homogenous and there are other treatments that are attempted prior to it if you are PD-L1 positive (as I am), or have a BRCA mutation. It’s my next line of treatment, should I need it, so I am pleased to hear your wife is finding it tolerable so far. Not sure Daisy’s suggestion to post on the breast cancer forum will help, as it’s not somewhere people with advanced TNBC typically post. I think I have replied to you before that I have come across people on Trodelvy on the Breast Cancer Now site, but I don’t know whether there are currently any active users there.

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