Trodelvy

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My wife is on her second  round of trodelvy  seems to be managing  not to bad fatigue  and constipation  being  her main problems 

My question  is how have others managed  and how long may she be on this treatment ie for the rest of her life

She has slight  spread in  her collar  bone lymph  nodes I think it's still  classed as local as not in other organs but was told its inoperable  don't know why ?

Any feedback  would be welcome  

A very worried  husband 

Kevin 

  • Hi Kev61

    While I don't have any answer for you I noticed that you haven't had any replies yet so I thought I'd reply to you anyway.  I notice that you are a member of the breast cancer forum.  I suggest that you put your question into that forum as well as it's a busier forum than this one. 

    Best wishes

    Daisy53

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  • Your wife’s medical team are the only people who can advise why it’s not operable. 

    Trodelvy is a relatively new treatment (approved Aug 22) and its approval is specifically for treating unresectable triple negative advanced breast cancer after 2 or more other therapies have been tried. Unfortunately you won’t find too many other people who are being treated with it. TNBC isn’t homogenous and there are other treatments that are attempted prior to it if you are PD-L1 positive (as I am), or have a BRCA mutation. It’s my next line of treatment, should I need it, so I am pleased to hear your wife is finding it tolerable so far. Not sure Daisy’s suggestion to post on the breast cancer forum will help, as it’s not somewhere people with advanced TNBC typically post. I think I have replied to you before that I have come across people on Trodelvy on the Breast Cancer Now site, but I don’t know whether there are currently any active users there.