I guess I am clutching at straws now , but wondered if anyone else in this group was told their tumour has not responded to chemo and then gone on to be successfully treated . Since I was told this yesterday I have been all over the place . Sitting here planning to leave , wondering how long I have left . I don’t have all the answers until I see the consultant on Thursday but after all I have gone through to be told nothing has changed is crushing .
Hopefully my words will provide some hope. I was told my chemo not worked so they bought surgery forward. Scans showed chemo not effective but on removing tumour a week later it had shrunk by a 1/3. My Lymph nodes hadn’t responded at all though. After surgery I had radiation and oral chemo for 6 months and much to my oncologist surprise I am ned for now. So carry on fighting there is hope. Also look into changing diet , omega 3 research.
Hello DC6 thank you for your response it certainly gives a different perspective on this . So pleased that you are now cancer free Do you mind if I ask you a couple of questions . What type of chemo did you have initially and for how long ? I have done 3 cycles of EC and was due to start 12 weeks of PC on 21st December . Unfortunately I was admitted as an emergency to hospital with an unrelated condition which saw me in hospital all over Xmas and I have just had an operation to sort it out . So this news was devastating for me as the treatments was already delayed . Last chemo 7th December . What stage and grade was your tumour and do you know how big it was ? Please don’t feel you have to answer . Xxx
My tumour was 8.5 and 3 lymph nodes I was grade 3 stage 3
I did 4 ec and 6 pax/carbo so 5 months of iv chemo.
feel free to ask any questions. I don’t mind.
I also add I feel really well now even though had a lot of treatment
Thanks same grade and stage as me , tumour is 11.5 but they don’t think lymph nodes involved Did you have a check on the response after the EC ? I suspect they may want to try the pax/carbo or maybe they will do surgery .
I also feel rubbish and I don’t know if this is the cancer or still revive from operation which was only a week ago.
really great to hear you feel so well. Did you have a full mastectomy? Xxx
I had a ct after ec and half way through pax/carbo
I chose to have a bilateral mastectomies lucky i Did as the other breast had dcis undiscovered from the scans
they said my other breast not involved but were you offered the choice to have a double mastectomy, maybe I should consider this ? Did you have reconstruction or will you have ? Is this even offered ? Thankyou for sharing xxx
They won’t take both off without a psychiatrist saying you have good rationale.
in one way having a breast is safer because reaccurrance are monitored by mammograms I can’t have follow ups as have no breasts. They did offer me reconstruction but I declined so any reaccurrance isn’t hidden. This is a personal choice and it may feel different to you. It is very hard as so many decisions to take.
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