Hi all ,
I am fresh from a diagnosis yesterday with triple negative breast cancer . Still shocked to be honest . Treatment plan is surgery , chemo then radiation .
have an appointment with the surgeon again on Tuesday to decide whether a lumpectomy or mastectomy.
is there anyone of you going through this currently or have been through it ?
thanks
I can see why you made that choice , although not gene tested myself ( I am too old and not enough family history) the whole thought of yearly mammograms now and that fear anyway ,led me to discussing the same with my surgeon . We opted for a single mastectomy now to aid the healing process , no reconstruction at present . We will see for the future . Hope all is progressing well with your treatment . X
Hi I have just finished the same course of treatment for triple negative breast cancer which was diagnosed on 22 December 2021. I had a lumpectomy for a 2 cm tumour, mastectomy was never discussed. I’d have asked what the advantage of having the mastectomy was, as it’s a much bigger operation…..Good luck with your treatment, whatever you decide and I hope everything goes well. Take care xxx
Hi we did discuss a lumpectomy but because I have a history of breast pain they said that it could get worse due to having to do some reconstruction . It might sound odd but after putting up with the pain for over ten years I decided to take the bonus ( if you can call it that) and get rid of the cancer and the long term pain in one go .
hope you are through the other side now and all is well x
Morning ,
I had my surgery yesterday and all went well , lymph nodes negative ., which was a massive relief .
how are you doing ? I hope you managed to start your chemo the following week and that all is going well for you ?
x
Hi Moira
That's great news!
Yes, I started chemo last Wednesday and seem to have escaped the major side effects so far. The first few days I felt lethargic rather than ill and the last couple of days I have felt back to normal. I'm hoping things won't be any worse after my next cycle in 2 weeks time.
Do you know what your planned follow-up treatment is yet?
Good to hear it is going well for you . I know I will have to have chemo but not any detail yet . I am guessing that appointment comes after all the results are in .I am trying hard just to do one step at a time , although it is debatable whether my brain is on the same programme !!
Sorry, because you'd said that your lymph nodes were negative I misread your post and thought you'd had your results. Should have said glad to hear the surgery went well. Hopefully you're not too sore today. I had my results from surgery and lymph node biopsy 3 weeks later and that was when I was told I'd need chemotherapy.
Take care x
Sorry , I am not really being clear . They did check them during the operation ,I had a SNLB and they were negative . They will re test the lumps that were in my breast and I get those results in two weeks and then they make the decisions . They told me at the beginning that because it was triple negative I had to have chemo , I just don’t know yet the extent of it or what the programme will be .
I am surprised how well I feel today just a bit sore nothing worse .
you take care too x
Hi Moira
I think I had my first onco appointment about 3 weeks after my pathology report meeting. With an 18mm TNBC tumour and no lymph node involvement I was advised to have chemo because there was some vascular invasion from the tumour I have had 4 cycles of EC and will have 12 weeks of Paclitaxel once this last EC has cooked. Plus 3 years of 6 monthly Zometa infusions (bisphosphonate)
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ. VAT no: 668265007