Newly Diagnosed Medullary Thyroid Cancer Awaiting Staging

Helllo

Welcome to the Thyroid forum.

I am sorry that you have not yet had a reply to your post but sometimes it can just take a little longer for someone who has had a similar diagnosis to see it and offer support. 

I am sorry to hear that you have had a diagnosis of medullary thyroid cancer. I hope that you are recovering ok from your surgery. I know with my own cancer it can feel tough to wait for the post op results and everything can feel a bit in limbo until you know whether any follow up treatment is needed. 

In the meantime do give the Support Line a call if it would help to talk things over with someone. They are there from 8am-8pm daily. 

I hope your staging results come back very soon and in the meantime we are here if you need us.

Jane

Hi, I had a total thyroidectomy and neck dissection in May with having MTC. Unfortunately my tumour was very big and stuck to the windpipe so the surgery did take a lot longer than expected. In my opinion the surgery has been the easiest part. I still have some numbness on the right side, aches and pains, and still have that sensation that something’s stuck in my throat,which is just uncomfortable but no problem with eating or drinking. Also suffering with brain fog and tiredness but I rest when I need to and it’s getting better.

i found it difficult to find any information or anyone that’s been or going through meduallry thyroid cancer because of how rare it is, if you do have any questions I’ll be happy to answer