Newbie Here... Hello

Nevs25 9 days ago

2 replies
28 subscribers
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Hi All

I am hoping that this group will help me on my journey. I don't have all the correct jargon but have gathered lots of basic info.

I have had all of my thyroid removed, in 2 separate ops. I have recovered from both really well. CT scan says the cancer has not spread.

I am booked in to have Radioactive Iodine Treatment on 7th April, this is daunting. I am trying to gather as much info re the Low Iodine diet and the possible side effects from the RIT. Any advice / websites / general chat would be most welcome.

Thanks

k9crazy 8 days ago

Hi Nevs25 just wanted to welcome you to the forum. I'm sorry you've not had any replies yet re the RAI treatment. Unfortunately my variant (Medullary) doesn't respond to RAI so I can't help you but hopefully someone will pop on soon with some advice. This forum can be a bit slow sometimes but it's a great resource from members who haved experienced this first hand so hang around and I'm sure someone will reply soon.

Best of luck with your ongoing treatment. X

Medullary Thyroid cancer dx May 2023

TrinityTrace 8 days ago

Hey,

I had the 131 and stayed in hospital one night as my levels dropped really well, the diet wasn't too bad tbh as long as you avoid everything you shouldn't eat and limit some. It's not an exact science just the lower Iodine helps it work better.

I didn't seem to have any side affects from it itself, I have side affects from the high dose Levothyroxine and high T4 levels etc.

Few days after you have the RIA you'll go back to hospital for a scan to see the uptake of it.

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