Waiting results

Hi Nat.w22,

I don't have the same variant as you, mine doesn't respond to RAI so hopefully someone with experience of this will reply soon.

But I can certainly empathise how difficult some of us find trying to accept life after diagnosis. Everyone is going on about their usual lives but ours changes completely and others expect us to slot back into "normal" life! I can reassure you that little by little it does get a bit better with time though. I'm 18 months from surgery now. 

My variant needs lifelong monitoring which is in some ways reassuring but equally worrying at the same time at what might be to come. Like you I still get worried over little lumps, changes and twinges. There's also alot going on as our bodies get used to life without a thyroid and on a replacement synthetic too. That said, I think it's good to be vigilant and proactive over our health now, although sometimes it's still a battle to get listened to or seen over concerns.

I was misdiagnosed by GP for 10 years so I've lost faith. Being determined not to let things get missed in future but trying to balance this with trying to manage recurrence anxiety is the only way forward for me. I'm not always successful and the brain spirals some days but on the whole it honestly does get more manageable. If you need help with this do you have a Maggie's centre near you? Or the Macmillan helpline could give you some support.

I wish you the best for your results on Monday. As we go on and hopefully the results of tests/scans start to come back ok, then along with that comes the reassurance we need to quell the fears and keep going. X