Confused

  • 8 replies
  • 27 subscribers
  • 232 views

Hi, I have a 34mm nodule on my thyroid gland, had US done then a biopsy done, I went for my results last week I have been advised to have half my thyroid removed, the consultant said to me he will no longer be calling it a nodule but will now refer to it as a tumour, and there was some cancer cells found in it but won't know anything more until he's removed it and can open it up to have a look at it.  Now I'm going to ask a possibly stupid question, does that mean I have thyroid cancer? The doctor never said those words to me, I feel a little confused by it all.

  • I went through exactly the same situation  I also had half removed then after the cancer diagnosis the other half was removed  then radiation treatment which I have just received with no problems  

  • That's good to hear you've had no problems, thanks for your reply

  • Hi Pikawika, sorry to hear you're feeing confused over your diagnosis, sometimes these appointments can feel like a blur, your brain goes into shock it's hard to take everything in and you don't end up asking questions you only think of when you get home! No questions are “stupid” please don't worry about asking us on this forum, we will always do our best to help. Were you given the contact number for a Clinical Nurse Specialist, a Macmillan nurse or the secretary of your consultant? It would be worth contacting one of those for clarification of your diagnosis. My CNS has been an absolute Godsend and a real lifeline between consultant appointments. Hope your hemi-thyroidectomy goes well, do let us know how you get on.

  • Hi no I wasn't given any phone numbers, just basically told waiting time is 3-4 months for my surgery and they will contact me 2-3weeks beforehand.  I think I might give my Consultants secretary a call tomorrow.  Thanks for your message i will update on my surgery.

  • My son had a 50mm tumour on his thyroid. He was given 4-5 weeks of chemo to shrink the tumour before surgery to remove the whole. They said it needed to shrink to 45 mm before they could operate. It did, but after 4 rounds he was told he would need to do 6 rounds in total to be sure they could get thymus gland out out whole. He starts round 6 in 4 days. Just telling you our experience in case it helps. I have read that thymus tumours tend to be slow growing

  • Sorry I meant 4-5 ROUNDS of chemo

  • May God heal your son. Be strong and believe. 

  • My tumor was a 100mm  at the widest point and was taken out in 2 operations it was classified as a t4   had rai tablet recently  all went well  just have to attend the hospital every  3 months but all good