Poor Differentiated Thyroid Cancer

Hi ElleB, I'm sorry to hear you are going through this. 

I saw that you hadn't had a reply so hopefully by replying to you it will bump your post to the top and you may get some helpful replies. There's alot of experienced people on the forum but of course they may not be checking in over Christmas.

Unfortunately I can't help as I have Medullary TC. 

I hope you got some answers from the oncology appointment you had.

Best wishes x

There's a very wide spectrum between highly differentiated and undifferentiated - and it's unclear where you sit along that line. But, if the doctors got it out without seeing any spread, I'd say don't worry overly about precisely what you HAD because it's been removed.

PDTC can include a wide range of subvarients. I have one of them and 13 years later all's fine and dandy. 

Thanks Barbara and K9crazy

i saw the oncology team a couple of days ago and they’ve decided to go belt and braces, skipping RAL and straight to radiotherapy. I feel much better now there is a plan.

I can point you to a facebook forum for Poorly Differentiated Thyroid Cancer, sorry not allowed to give a link on here but you should be able to find it.  It is an American forum but lots of British people too and from other parts of the world.  I have poorly differentiated cells in my lung (Papillary Cancer) and 60% Tall Cell Variant.  Lots of difference experiences shared and information.

Thank you for that, I’ve found the group and have requested to join. Sorry to hear about your diagnosis, hope you’re doing ok. 

Thank you @ElleB I keep battling on, not been a great year last year but hopeful that now I am on Lenvatinib it will help stop the tumours or even shrink them.