Waiting biopsy results

I'm sorry to read this, it sounds like you've been treated very insensitively to say the least! My FNA wasn't conclusive so had to have the biopsy aswell but the whole process was dealt with in a sensitive way and when it was eventually confirmed, there was a Macmillan nurse present. In my opinion until those results are known he should've been far more guarded in what he said to you! Even just hearing the word cancer is terrifying, especially when you haven't even had any results yet! 

Also, can I just have a mini rant? I get so annoyed when I hear people being told thyroid cancer is a "good cancer" to have!! It's been said to me too. No cancer is good!! I know they are just trying to reassure but having a cancer diagnosis is still life changing regardless. It belittles what we go through. Rant over, sorry :)

I'll keep my fingers crossed for you that your results are clear. I'd be chasing them if I were you, a month is a long time of waiting and worrying and not knowing.

Best wishes and hoping for the best for you x

Please feel free to rant away always. I spoke to my the receptionist at the GP and there was no results last week. I asked to book in for thyroid blood tests and was told it's isn't in your notes so they spoke to my doc and a few days later was told to book in for blood tests after a month. 

It's just a confusing and scary time and the last thing you need to hear is the big c. Every cancer is scary regardless as you don't know what's going on inside your body. Especially when you have two little kids asking questions and being scared and anxious about the future. I have no answers for them just living one day at a time at the moment. I feel tired all the time and I don't have the energy that I used to have. I suppose I just want answers and it's great to have somewhere to write this down. Thank you for the support k9crazy 

It's an awful time for you where you are at the moment, especially with young children. Even though my daughter's 20, I've been a single mum all her life and we're so close. Seeing the shock of it all for her is heartbreaking.

I was misdiagnosed by my GP for years. Don't be fobbed off by your GP putting you in for the standard TSH tests they do. Mine showed in the normal range right up to diagnosis! You need to push for T3 and T4 to be tested but most GPs won't do this. Whether it's down to lack of knowledge or cost I don't know. Not sure why they've asked you to wait a month for yours. The ENT consultant that did your biopsy should have a secretary's number. They should be able to relay info to the consultant and check if your results are in. I've found I've had to learn to push to get answers but my current ENT team I'm with now is very good. I bypass my GP whenever I can now!

Any Thyroid problems can make you very tired and so can the added stress of all this you're going through. On top of looking after 2 young children! One day at a time is definitely the best way to get through.

I really do hope you get some answers soon x

All my thyroid bloods are normal they keep expecting to see elevated thyroid levels due to the mass in my neck. It's huge. I am getting seen through endocrine not ent unfortunately as we have no ent for adults in my trust. 

I think what's so frustrating for me is that affects my breathing, my swallow and my voice and I may as well be talking to the man in the moon I know it need it removed by surgery that's a given but just want to be able to eat again without worrying about choking or making my food soft enough to swallow. Sorry for ranting on, just so frustrated

Hi both of you,

I waited for 4-5 weeks for both biopsy results and was given the result of Thy 4. I am 4 weeks past hemithyroidectomy  tomorrow and waiting for results yet again. Been sent an outpatient appointment for after Christmas but it was sent just a week or so after surgery so not connected to the results. 
the anxiety from waiting is awful, also very tired and my kids are 18,21 & 24. I have low vitamin D but anticipate the increase in tiredness May me my thyroid reacting to surgery.

I did have a number for a medical secretary but this last week it says there is no one answering that number. I haven’t been given the contact details for a CNS nurse and not sure if I would have access as not diagnosed with cancer, just suspicious. 
I am struggling to get ready for Christmas and with work. 
I feel for you both , I am comforted at knowing I’m not the only one going through this. I don’t want to make a fuss especially if my results are negative in the end !

Hi 60sBabe, sometimes it eases the stress a little just to know you're not alone. This forum is good for that. 

That's frustrating you can't get hold of anyone at this stage. I don't see it as making a fuss. You need to know. 

It's good you've got past your surgery. My surgery came after my results came in.

And you've already got an appointment in place, hopefully they'll be able to discuss your results with you then. The waiting really seems like an eternity!

thank you

It's just great to have someone to talk to who has an idea of what we are all going through as a lot of people just stare at my neck and don't know what to say apart from any news. So thankful to have extra support here. 60sBabe k9crazy  it is very hard to concentrate on anything else I am trying just to focus on my kiddos and work as much as I can to distract myself from the not knowing. I find it strange that I am going through endocrine rather than ent too. Glad to be able to support others too.