I first found my lumps at the beginning of July last year , my GP referred me mid July2022 but there were so many delays and miscommunication between all professionals along the way I didn't get my total thyroidectomy until December 2022 & finally recieved my diagnosis in January2023. I'm still waiting for my RAI (I've been told it won't be for at least another month yet), and an 'urgent' chest Xray (current wait time 4 to 6 weeks).
My cancer is an aggressive variant, it was on the edge of my thyroid (not contained within), they had to burn through the cancer to extract it. Also it had aquired its own blood vesssels.
I'm worried its had all this time to spread. Especially as my oncologist said that there was little evidence for RAI being used to stop the cancer coming back but that I was having the RAI for staging, monitoring & tracking purposes. (Surely you can only track what is already there???)
I feel like I've been kept in the dark, told different things by different professionals, and this journey has taken far long than it ever should have! But just wondered if this is normal and I'm just overthinking things??
Thank you.
