Hi all,
Just wanted to reach out and send some love through sharing my story in the hope that I’m not the only one trying to make sense of these mishmash of feelings.
I’m 33 and received my diagnosis of follicular thyroid cancer at the beginning of November. I have just undergone my second surgery for a total thyroidectomy 2 weeks ago, my first surgery to remove what turned out to be a cancerous tumour was the end of September.
From the beginning even though multiple scans and a biopsy could not determine was this nodule was, I knew that even if it was cancer it would be very treatable. Completely clear blood tests convinced me beyond doubt that it was nothing so to get positive results really knocked me off my feet. I was told there was a good chance that the cancer had already been removed but that the TT would help with monitoring going forward and reduce risk - I’m classed as high risk because of the size of the tumour removed and the fact the cells were trying to break through the tumour into my blood vessels.
I think I’ve downplayed this whole situation a lot - because it’s highly treatable and quite possibly already removed etc. I was so strong and positive up until my diagnosis and to be honest right up until a few days ago when the reality of the situation just seemed to hit. I don’t feel like what I’ve been through is a lot - there’s a lot of people who have it a lot worse I almost feel a bit of a fraud. When speaking to my nurse she reminded me I have had a diagnosis of cancer and have had treatment for cancer and I just haven’t been able to control my emotions ever since. I have a meeting in January with my consultant and oncologist to discuss potential further treatment .
Sorry I’ve probably just rambled! I know I will be ok, and I will be back to being positive I’m just struggling to accept and process everything that’s happened the last few months?! If anyone has any tips on coping techniques or acceptance it would be much appreciated.
Anyway sending health, hope and happiness to everyone xX
Hi Ella2708 and a very warm welcome to the online community
Thanks very much for taking the time to detail your experiences with thyroid cancer. I'm sure other members of the group will find it helpful, especially new people anxious about what might lie ahead.
I think we can spend so much time trying to reassure others when we have a cancer diagnosis that everything is going to be okay, that when we have time to think about it properly that's when all our emotions are set loose.
A lot of people find this paper called 'After The Treatment Finishes - Then What?' really helpful in coming to terms with what has happened and learning how to deal with it.
Wishing you all the best
Hi latchbrrook
i hope you are well! Thank you for the reading link- just what I needed. I am doing well and am going into hospital in January for a knee replacement. It has been a rollercoaster of a year and one I won’t forget in a hurry. Wishing you and all in this group a peaceful and joyful Christmas xxx
I understand what you are feeling and I sometimes have to pinch myself that I have Cancer as it all seems like a dream to be honest. You go through the tests, the diagnosis, the operation and in my case treatment of RAI last week. For some reason it doesn't seem real, but of course it is. I think if I felt ill it would feel more real, but as I feel well apart from a stupid cough and constantly having to clear my throat due to vocal cord problems, which I need an operation for shortly, I feel well. You are a lot younger than me @Ella2708 and it has to be harder to get your head around, I don't know how I would have coped if I had got Cancer when I was younger, but all you can do is go through the various steps one at a time and talk things out, which can a good way of getting rid of those feelings and in a safe environment with people who understand what you are going though. Best wishes x
Thanks for the link @latchbrook I will take a look at this myself.
Hi Latchbrook,
thank you for the reply and for sharing the link. I had read this quite a few times over the last week as it is literally as if he has plucked the thoughts straight from my head and written them down! I will keep referring to it as it helps me to comprehend that perhaps my feelings aren’t as alien as I may think they are and that if I reach out there may be other people that feel the same. Thank you
Sending health and happiness to you and your loved ones for 2023.
xX
Hi Petal,
Thank you for taking the time to reply
This is it…I feel fairly well considering I have cancer. It’s such a barrage of emotions I do struggle to make sense of it all sometimes! Very surreal. I’m sorry to hear you will have to have an op for your vocal cords, I’m hoping I will be lucky enough to recover without the need for additional surgery. I feel your frustrations and wish you the best. How are you feeling after RAI? I have a number of appointments coming up in the couple of weeks as I have been referred for this particular treatment. I understand my case to be priority so I’m expecting this to roll out fairly quickly - as all has done so far.
Sending health and happiness to you and your loved ones for 2023.
xX
I'm glad the link has helped you Ella2708
Keep reaching out as you'll find that most people who've had cancer can identify with some if not all the feelings you have.
Wishing you all the best
x
I was fine thanks @Ella2708, after I got home I had a couple of days where my tummy was off, and felt a little nauseous although not too bad, and I had been given anti sickness pills so I took one if I felt queesy. Feel fine now and happy to get it out of the way and onward to the next hurdle. Hope your appointments go well and you can also receive your treatment quickly. Best wishes x
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