Hello, new here

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Hi everyone, ive recently been diagnosed with papillary carcinoma. Ive been trying to stay as positive as possible however i do have my days when i feel overwhlemed and feel everything is out of my control. I have wonderful friends and family however feel when i get worried and start talking about what/if it spreads when i feel new pains they get so upset that i feel bad for burdening them with my worries. I know my whole thyroid has to come out along with the right sided lymph nodes as they are infected and i have to have a biopsy of the left side tomorrow to see if the lymphnodes there need to come out, so it will be a neck disection regardless. I am not too worried about this part but i have a CT scan today on my neck, lungs and thorax which is causing me so much anxiety and worry as i now feel pain in my chest but i dont know if thats just severe anxiety. I can deal with having the surgery due to the thyroid but anything else just scares me out of my mind. I feel sometimes i am frozen. Is anyone else going through the same thing?

  • Hi Aby I’m sorry that you find yourself here but the support of this group is amazing. If you have a look at my profile you can read my back story. I feel fine and well bit know exactly what you mean by that terrible feeling of dread and worry and anxiety. I am having to cope with these feelings since my surgery in February and don’t always want to worry my family unnecessarily. Hence this great group. Every twinge and ache I feel especially in the neck area I fear the worse but then I try and put my sensible hat on! My surgery was a success as was RAI and I’m being taken great care of by the team. I’m a teacher so feel easily overwhelmed  by the pressure of work and my throat feels very sensitive and voice easily strained so I’m taking extra care of myself. Please do the same and be kind to yourself. Let us know how it goes tomorrow and take one day at a time. You will get there x

  • Hi Dexx,

    Thanks so much for replying, i have just read your story now and so far you are very similar to my story. I had a CT scan today on my neck, lungs and thorax which has really frightened me. I worry so much about it spreading and the thought of having to wait a couple of weeks for the results is unberable on times. I had to have the dye for the contrast today which is via a cannula and they had to attempt it 3 times (im petrified of needles so this just makes everything with cancer worse as ive already had loads of needlesSweat smile ). The thought now of tomorrow is also just dreadful, the doctor has given me some diazapam so im hoping that will help Blush.

    Im glad to hear your treatment went well but i understand how every twinge can cause worry. I really hope that feeling gets less and less for you as time goes on. I think your absolutely right and its one day at a time.

    Take care,

    Aby

  • I’m also terrified of needles but gradually getting a bit more used to it! I always need to lie down when they’re taking bloodJoyJust get through the appointments and dates in your diary, knowing you’re a step closer to getting sorted! As people have said to me in this group- treatment is very successful. If only our thinking was easily treated too! Deep breathes and nice thoughts as much as you can. I’m waiting on my bloods coming back this Friday to see if my levothyroxine is correct. Then my check up with the endocrinologist in November. Quite possibly I’ll be having knee surgery too in November. I ran a lot and have damaged my knee! This is a year I’ll not forget in a hurry Weary Onwards and upwards Amy. X

  • Hi Dexx,

    I think im going to need to tell them i need to start lying down JoyYou have got a lot going on! Onwards and upwards deffinately Blush....i know its not the physical health thats so hard to deal with its the mental health with it all! Sweat smile i hope all your levels are correct now! 

    Aby x