Hello everyone - this is my first post on my first ever forum.
I had the second part of my thyroid removed in September - first being removed 13 years ago. They found the tumour to be cancerous - papillary carcinoma so I have just had radioactive iodine treatment. ️
The body scan shows there’s nowhere else the iodine went which is good news, but I’m struggling with all my emotions and tiredness. I’m on 175g of Levothyroxine.maid that how others feel/have felt?
I have lots of little lumps around my hairline and behind my ears - lymph glands?
Any virtual shared feelings or hugs are welcome
I'd say getting used to life after losing your thyroid is toughest in the first 6 months, a bit better from there to 12 months and after a year or two, you may well start to feel a bit more normal.
At this stage, it's typical to not have optimised the thyroxine dose and I can imagine that your docs might not have been giving you blood tests very often to help get that dose right for you.
Do you happen to have your most recent blood test results? That would give us a rough idea of whether your tiredness is due to too much or too little medication.
Emotions? Heck, everybody from the healthiest to the least are feeling emotionally all over the place after two years of Covid so those people recovering from surgery and losing their thyroid are highly likely to feel emotionally challenged, even beyond the run-of-the-mill Joe public. If you need a chat, there nurses on the Macmillan helpline can be very supportive if you don't feel you can lay all your emotional worries on your friends and family. But please try to find somebody you can trust and talk to them.
Virtual hug heading your way.
Best wishes
Barbara
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