Hi Everyone Happy to be alive,

Hi and welcome to the Online Community. I'm not from this group as I have a different type of cancer but I'm so sorry to read about the pain you went through after your op. When I was on the recovery ward after my op my nurses kept monitoring if I was in pain and when I went on the ward the sister said "don't let the pain take over" so I'm astounded that they let you suffer like that. Did you tell your surgeon after about your experiences?

Hopefully the members here will be along soon to offer their experiences and support.

It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep writing the same thing over and over. You can amend or update it at any time. 

To find more information covering diagnosis and treatments there are pages covering most types of cancers which can be found on our Online Information and Support Section. 

Macmillan Support Services also offer lots of information, support, financial guidance or just someone to listen. It’s free to call 0808 808 0000. Most services are available 8am to 8pm, 7 days a week. Have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two to three working days for replies from our expert team.

Sending you welcoming hugs B xx

I can't help. I sailed through every surgery I've ever had without any nasty reactions. In fact, the only really painful time I had was when they gave me Tramadol after my completion and I felt like somebody was tearing my rib-cage open. Never again.

We're all different. Some people can give birth in the middle of a phone call and be back on the treadmill the next day, other people get a paper-cut and need to lie down until the agony passes.  And we don't always know where we'll be on the spectrum. Please see if you can get the surgeon or anaethetist to give you a record of what you had so that if you ever need surgery again, any subsequent doctor can be pre-warned that they may need to dial up the medication for you. 

Hi, my journey so far is very similar to yours I have been disagnosed with follicular cancer and had the rest of my thyroid removed last friday. I, similar to you didnt feel any major pain with the first surgery and was discharged the same day, but this time I woke up from the GA and felt like my neck was getting ripped out.. tears started flowing down my cheeks which was spotted by the nurse straight away and she asked me if im in pain, I nodded and she gave me painkillers into my vein and the pain went away within 20 mins. The nurse explained to me that its something to do with our muscle memory. Hope ur ok now !! xx

Best wishes for you. My wife was diagnosed with the same type of cancer (Minimally invasive Follicular carcinoma with vascular invasion). now we are waiting for the RAI treatment in Oxford. Biopsy report of TT came out clear of the disease last week. What’s your tumour size and do you vascular invasion?

I wish you all the best.  

Thank you! ! 

Yes exactly the same my tumour was 6 cm and has overgrown on my larynx ( voice box) and Iv been told its in my blood vessels, Im not sure if the invasion is the same thing but I didnt get any numbers other than T2 NX MX 

I have only just had the rest of the thyroid removed so I havent had the results from that yet. I am also now awaiting the RAI treatment at St Jameses in Leeds. Thank you for commenting, it would be good to follow each other on the journey and go through it together :)))) 

All the best to u and your wife 

Thanks for your Reply Iza_Bela. yes, vascular invasion is the same thing. but given that its minimal invasive, we have been told its unlikely to spread but you can't rule out. trying to be positive at the moment. Best wishes for you and your family. Not an easy ride but I hope everything goes well for all of us here.