New Here

FormerMember over 3 years ago

2 replies
28 subscribers
683 views

Hi I am new here,

I had a diagnostic partial thyroidectomy at UCLH, after my FNA was U3-4, seven weeks ago and the rest of thyroid removed three weeks ago after the biopsy of the first operation resulted in T1 papillary carcinoma.

I am getting my second biopsy results today, fingers crossed

I am on 10mcg thyroxine for the past there weeks. I have put on 5kg since the first operation without eating anymore than before and with the same activity) exercise levels as before.

I also get all sort of strange symptoms like, being light headed) dizzy, mood swings, fatigue, skin problems, facial muscles tightness to name a few

Anyone else has a similar issue? How long did it take for the thyroxine levels and the mad symptoms to settle?

Thanks

latchbrook over 3 years ago

Hi and a very warm welcome to the online community

I'm sorry to see that no one has come forward to share their experience with you yet but by replying to you it will 'bump' your post back to the top of the discussion list.

How did your appointment to get your biopsy results go? Hopefully you were able to discuss your symptoms at the same time.

It would be great if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

"Never regret a day in your life, good days give you happiness, bad days give you experience"

Motyl2021 over 3 years ago

Hi KonsP,

I see you had no responses here so I will tell my experience although it has been quite different. I had my first hemithyroidectomy a month ago which came back with the diagnosis of papillary thyroid cancer. I had my completion surgery (the other lobe of my thyroid removed) three days ago. I recovered pretty quickly from the first surgery. In the beginning I had very low blood pressure and felt very dizzy, even sitting in bed. However, after a week I could do pretty much anything and few weeks after I was even exercising.

Now I am recovering from the second one and this time the difference is, I have no thyroid anymore. I am on 125mg of Levothyroxine. It might be too soon to tell, as my body might be still trying to get rid of the anaesthesia as well as I might still have my own thyroid hormone supply, but I have been feeling pretty well. I don’t feel fatigued, I actually walked around 3 miles today. My skin looks good, and I am not experiencing any aches! I do feel slightly dizzy sometimes, as i said my blood pressure can be quite low sometimes (98/66-103/77) and my pulse rate is usually very low (48-59).

Regarding the mood swings I think I can relate. I keep crying, which already started in the hospital the morning after the surgery when I had a total meltdown and I keep crying at home too... for no apparent reason.

I hope this helps and I wish you all the best and a lot of strength.

lucia

More from this forum

New Here