RAI treatment

Hi and a very warm welcome to the online community

I agree that having a cancer diagnosis is a definite shock especially when you feel that you've done everything you can to be healthy.

I'm not a member of this group but I noticed that you hadn't had any replies yet. If you haven't already done this, if you type 'RAI side effects' into the group search bar you'll find lots of previous posts on this topic. You could have a read through some of them and reply to any of the more recent posters if you think they can help you further.

Wishing you all the best 

x

Hi Webbo14

I had my TT this time last year and RAI in July,  am in my  sixties and also on 150mg levothyroxine. I take my tablets in the morning and wait an hour until I eat anything, my stomach seems to be ok doing this, its hard to wait for a cup of tea sometimes but i do have hot water and lemon before the tablets.

With the RAI I did not have any stomach problems, just felt more tired than usual for a week after. There are lots of posts on here about what to expect from the treatment.

What a terrible year you have had, especially with lockdown as well. Lets hope once you have had your RAI treatment things start getting better for you.

Good luck x

Thanks Jan for your reply. I take my thyroxin at 6.30 every morning and then have breakfast 30 mins later. My body feels like it's running fast!

The consultant who preformed the thyroidectomy spoke with me yesterday and I wasn't impressed. He didn't seem to know much at all about Addenbrookes oncology contacting me for the RAI treatment and even told me Addenbrookes would be in contact as the thyroid was cancerous! I'm feeling very left out on a limb with no one really understanding what I'm experiencing.

Can I ask you, when your thyroid was removed did you feel like there was a massive restriction in your throat? Feels like permanent cheese wire across it! How long did it take for your voice not to feel tired and not in full range?

I'm sure I'm not the only one to feel this way.

Thanks once again for leaving comment. Truly appreciate it.

X

hi

I had a TT & neck disection nov19 rai June 20 . I’m on supression dose of Levo alternate 175/200 which is due to be reviewed next month.

I have had stomach issues since tt acid reflux stomach pains which Dr’s are looking at -I think linked to meds.

my voice can feel tired if talking on phone a lot at work but does get better overtime.

Your pain will ease it just takes time-but let your medics know if it doesn’t.       

Hi Webbo14,

I seem to remember feeling like that for a little while and my voice was definitely a bit hoarse a short while after the operation and can still be a bit deep now. Normally your ENT consultant will hand you over to the Nuclear Medicine department and your Nuclear Consultant will take over your continuing treatment and decide your levothyroxine amounts. If your throat is still as sore though, it might be an idea to call or email the ENT consultant to let them know how you are feeling, at least it will be on record then.

I hope you will soon get a consultation from Addenbrookes to discuss the cancer diagnosis and your ongoing treatment.

I do hope you start to feel better soon