Thyroglobulin levels

FormerMember
FormerMember
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Hi all, 

I'm new to this so here goes. My to has increased to 18. Had full  thyroidectomy and left side neck dissection 2 years ago and then radioiodine. My to went down to 13 and has started rising, also quite anemic. 

Any ideas? 

  • Hi and a very warm welcome to the online community

    I can't answer your question but I noticed that your post hadn't had any replies yet. If you type 'thyroglobulin levels' into the search bar at the top of the page, you'll find lots of previous posts which mention this. You could have a look through those and reply to any of the more recent ones if you think the poster can help you further.

    You could also post your question in the ask a nurse section of the community and one of the specialist nurses will aim to reply within 2 working days.

    When you have a minute, it would be really useful if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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  • Thyroglobulin in your blood doesn't necessarily mean you have cancerous cells. All it tells you is that you still have a small amount of thyroid tissue somewhere in your body. It could be healthy tissue, it could be bad stuff. But a level of 18 (assuming you are in the UK and those are whatever the standard units are) isn't especially high, especially if it's been 13 a couple of years ago. 

    Are your thyroid function tests coming back at levels your medical team are happy with? Sometimes if you're not adequately TSH-suppressed, you can find that it 'stimulates' those thyroid cells to create extra thyroglobulin. It's just something to think about. 

    However, if you've never had an undetectable level of thyroglobulin, then you do probably still have little bits of thyroid tissue - it's not unusual, especially after people have had neck dissections or had a tumour that was too close to crucial blood vessels and couldn't be completely removed. 

    Best wishes

    Barbara

    “Scars are tattoos with better stories.” – Anonymous

  • FormerMember
    FormerMember

    Hi latchbrook, 

    Thanks for replying to my post,  I'm not used to discussing my cancer with anyone outside my family but have looked through this site over the last couple of years many times. I will certainly take your advice and do a profile etc. Thank you for your advice. 

  • FormerMember
    FormerMember in reply to barbaral

    Hi Barbaral, Thank you so much for replying to my question, your reply set me thinking down different alleyways. Thanks again. 

  • You are very welcome – blimey, it’s hard replying to things on here at the moment. It’s driving me crazy.

    If you need any help navigating the alleys, give me a shout.

    Best wishes

    Barbara

    “Scars are tattoos with better stories.” – Anonymous

  • No problem 

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"