Micro papillary carcinoma of thyroid

FormerMember over 4 years ago

2 replies
29 subscribers
1250 views

Hi, ibwas diagnosed with the above on the 15/9/2020. I have my ENT appointment on 22/9/2020.

Rheumatologist who gave me diagnosis over phone told me it would just be cut out.

Gp said medical management.

Had a web chat with mcmillan nurse today. She advised that there are usually 2 options..surgery or active surveillance.

I have a mental health disorder..I have been extremely well, to a point the diagnosis (which can be temporary) was going to be removed after 15 years. However in the last week the psych professionals have changed their minds due to sudden increased need of help. ( not normal help, help with maintaining normal rational thought. Not hearing voices)

I have a family history of cancer

I experience sore throats, sore ears and difficulty swallowing quite often food and meds get stuck and I choke.

I have an autoimmune disease that means if I have surgery I qill have to have blood thinners first as I am high risk of developing a blood clot.

Any advice? Mcmillan said the dr has to consider my feelings. For me surgery would be best. I had my life back. I dknt want to live in fear of what the thyroid doing to abpoint it affects me mentally and I go backwards mentally. Do you think Dr will listen.

Thank you for your time. Xx

latchbrook over 4 years ago

Hi and a very warm welcome to the online community

I'm very sorry to read that you've recently been diagnosed with thyroid cancer. Although I didn't have this type of cancer I do totally understand the emotions that you'll be going through right now.

The doctor who is looking after you will certainly take into account your wishes. It should be explained to you what your options are so that you can make an informed choice. You might like to take a look through this information from Macmillan on your treatment options.

How did the meeting with your consultant go yesterday? Hopefully he was able to answer all your questions and you're feeling in a better place to make a decision now.

Do come back and let us know how you got on

"Never regret a day in your life, good days give you happiness, bad days give you experience"

barbaral over 4 years ago

Hello

The diagnosis you have is for a very mild, probably really slow-growing form of the most cureable and treatable form of thyroid cancer. A few years ago, there was even a campaign to get this type of carcinoma recategorised to not call it a cancer at all because it was so the psychological trauma the C-word can cause was just not 'worth it' for the actual danger involved.

So your docs are probably right to say either an operation (potentially removing just part of the thyroid), or a 'wait and see', watch and monitor type regime. If you're prone to the anxiety that you describe, I can totally understand your desire to get shot of it and get on with your life. But keep an open mind and let the doctors have their input. Many people who have lost all or part of their thyroid, would give their right arm to have it back again whilst others will barely miss it at all.

This cancer is not going to kill you but you still have to respect it and let it have its time in the spotlight whilst the docs work out what's best for you. I would suggest to ask that when the hospital MDT (multi disciplinary team) meet to discuss your case, they might want to include a mental health specialist in their discussions on what to do with you.

Best wishes and try not to let this tiny 'neoplasm' (that's what they wanted to call them if they were not dangerous) turn into a big nasty monster in your mind.

Best wishes

Barbara

“Scars are tattoos with better stories.” – Anonymous

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Micro papillary carcinoma of thyroid