Hi all,
I had hemithyroidectomy last year for cancer. About 3 months post op started having pain elsewhere (close to lymph nodes) which has continued ever since. I went through a breast cancer clinic today and a spot was identified on ultrasound. The young person was a practitioner rather than a qualified doctor and I doubt has ever seen thyroid cancer let alone possible thyroid cancer nodules in the breast, which I mention because my thyroid cancer shows up as solid hypoechoic and eventually turns from round to taller-than-wide. They said it was nothing…but the hospital and in particular the radiology department have been wrong more often than not. Now I am not trying to say it’s progression of thyroid cancer and inviting trouble but feel rather strongly that if it is it’s better to just face it and deal with it….but there doesn’t seem to be any experience left in the NHS. For example I was told my voice changes were fibromyalgia and it turns out I have a spot on my larynx. I wanted to ask if anyone has had thyroid cancer progress to metastatic disease and how long it took to get experienced help? What treatment options are available?
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
It sounds like you've been through an incredibly hard time and I hope you don't have to wait too long for your results from your recent visit to the breast clinic.
While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
