Hi Everyone, back in March I had my left thyroid gland removed due large growth which turned out to be papillary thyroid cancer, on results it was decided that they needed to complete the removal of my whole thyroid.
This was completed 2 weeks ago now and I’m taking my daily levythyroxine and calcium tablets. I’m feeling very lethargic and struggling to carry out basic day to day tasks. I don’t expect to feel perfect right now but I find resting all day makes me feel terrible but getting up and being a little active also makes me feel equally terrible.
has anybody on here had similar issues? Anything that helps?
I am booked in at ENT next week so will go through with them, just wanted to know if how I’m feeling is standard post op.
thanks for reading
Hi I had thyroidectomy last july, I'm still having problems now with calcium as went down 5 months after stopping supplements. I was not to bad after my surgery, I'm actually having more problems a year later. I've been referred back to ENT got telephone appointment tomorrow. It is normal to feel the way you described but I would tell your consultant. Everyone is different. Gp has put me back on supplements but still have achy legs and knee, and the odd twitch, I am finding it a bit harder at work at the moment and my job is physical. It can be a long recovery. My advice would be to tell consultant everything.
Hi! I am 42 M, I had total Thyroidectomy last week. I am on similar journey and I want to wish you good luck. For me, so far the only thing worrying is my shoulder and neck movements and slight discomfort while swallowing food. I looked up the internet and it seems it is due to RLN (recurrent laryngeal nerve) injury. I will be getting the dressing removed tomorrow from the GP and planning to ask them, but TBH, i dont expect much from the Nurse who might remove the dressing.
Did you guys also face difficulty with shoulder and neck movement? How long did it take to go away?
It only took a couple of weeks and I could move neck fully but when swallowing still feels a bit tight at times that's a year later and hard to swallow when have hair washed at hairdressers. I'm now got to wait until December for endocrinology appoinment to see if calcium problem is permanent I'm back on supplements and latest blood test were just in range but they done calcium check twice with 2 different results one being a bit low but no further action. I'm still got some symptoms of low calcium. Asking at medication review when I can get an appointment. Lab would not test PTH. Are you on calcium tablets?
Somehow, in my case they have not asked me to take any calcium supplements yet. Probably my blood test results showed normal Calcium levels for 3-4 days while I was recovering from the surgery and I am just 1 week post surgery. But, seems similar in your case, your calcium situation started 1 year later. I wish you good luck with it.
I was on calcium after surgery for 6 months then took me off them then 5 months later calcium dropped.
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