Newly diagnosed

Hello. Everyone has a different experience but I found good support from the Butterfly Thyroid Cancer Trust. 
I have not come across anyone having a pet scan for thyroid cancer and it is not listed as a possible diagnostic tool on the cancer research website. 
I wish you all the best for an excellent recovery.  

Hi Missev96, welcome to the forum but sorry you find yourself here. I agree it can be a lonely place when you've had a cancer diagnosis but do post any worries here. It's not the fastest of platforms but there's usually someone about to advise. And don't forget if it all gets a bit overwhelming the Macmillan helpline is there to help you. Make sure you ask your consultant for the details of your Clinical Nurse Specialist. In between appointments they can be such a valuable point of contact for any help/advice.

I agree, most posts I've read on this thyroid forum have MRI and CT. I know on the Head & Neck forum, members have mentioned having PET scan after radiotherapy to check how well treatment has worked but I think if you're having surgical treatment alone, NHS would usually do MRI and CT. If you wanted to, you could perhaps pay privately for a PET scan?

I had a different variant so my experience won't really be relevant or helpful but I'm sure others will be along soon to reassure you with their experience of their surgeries and RAI. I wish you all the best. X

Hi, thanks very much for taking the time to comment. That’s very helpful info - I’ll look into the butterfly trust :) 

1. Hi, thanks very much for replying and sharing your thoughts & advice, I really appreciate it! They found the cancer due to raised lymph nodes on my groin and neck - ultrasound was okay for the groin so I’m probably just being paranoid, but this is the reason people are advising for PET scan. I’ll ask the doctor about the range of scans you have mentioned. And thanks for the advise about the helpline, I didn’t know about this :) much appreciated x