Radioiodine

Hi Tomo

I bet you’re glad to get that over with. My taste altered too, especially sweet things, it lasted about 6 weeks then all was back to normal. 

Hi Marg, I have also been very tired I sleep alot, 8 hope your treatment works for you love to all Tomo xxx

I was glad that it only changed for a few days for me.

How are you doing?? 

Hi not sure if message was for me or Tomo? 
I’m ok physically, still up and down emotionally but I guess it’s to be expected. How are you?

 Marg06 it was for you both Tomo 

I'm so so... I have had a partial, then total thyroidectomy.  Had my RAI in July. Full body scan was clear afterwards.  Just had 3 month follow up ct and it has shown that I have nodules appeared in both of my lungs. I have to wait 8 weeks before a repeat of the ct, to see what the nodules are doing.  They intimated, that with my type of thyroid cancer, it will more than likely metastisised thyroid cancer.

I am gutted

Oh I’m so sorry you’ve had bad news. Your journey sounds similar to mine - I had RAI in July after a hemi then total thyroidectomy. What type of thyroid cancer do you have? 

Hi... I had poorly differentiated thyroid cancer 

I don’t know much about that type, mine is different, but I hope your next scan goes better.  8 weeks is a long time to wait when you’re worried, are you able to keep yourself busy with work etc? Sending a big hug 

Hi Rock diva,yes I have lung mets and also windpipe,and in larynx had one vocal cord removed as well as all my thyroid and 7 lymph nodes , just gotta be grateful and enjoy life while you can ,love to all Tomo xxxx

Had my RAI too, came home on the 23rd December, and pleased to get it out of the way.  Sorry to hear it has affected your tastebuds @Tomo, it hasn't mine yet, but I realise it can do.  I already lost my sense of smell  around 15 years ago due to nasal polyps and had 5 operations to remove them over the years, so really don't want to lose my taste buds too, but a price we have to pay to get rid of cancer.  Hope you are feeling ok, I had a couple of days feeling a bit nauseous after returning home but no side effects while in hospital, and I was given tablets to help with the nausea which wasn't too bad and didn't stop me eating my Xmas Dinner.  The worse part was waiting for transport home as I had to wait 7 1/2 hours and eventually they got me a lift in an ambulance.  I was thinking I would be in hospital over Xmas otherwise.