Papillary Thyroid Cancer

hello Sidney. Welcome to the group. I m new here too. good luck

Nice to know I’m not the only newbie  Here if you need me and all the best on your journey x

It might not match how you are feeling right now but I would say you are extraordinarily lucky to have an operation that found an unexpected tumour. You will already have adapted to the idea of life without a thyroid, and if your Graves was bad enough to need a thyroidectomy, I'm going to predict that life without it will be a lot better than life was with it,
Hopefully you won't need us much but you're very welcome. Try not to read up about things you won't need to go through that might seem scary and feel free to ask any questions you have now or in the future.

Thank you and yes I’m very lucky and very fortunate for it to have been found when it did but still a massive shock as was not expecting it at all. I’m feeling better from my Graves thanks. Just need to get my head round it all!! You never think it’s going to be you who is affected with cancer. I think because I was told and the surgeon discharged me and I don’t need any follow up I suppose I feel abit abandoned and what do I do now.I spoke to an advisor on the phone from Macmillan last week and they suggested joining the online community. Thanks for your reply and words of advice it’s much appreciated. x

Excellent news for you @Sidney78 I think you may need some time for it all to sink in.

Thank you and you have hit right on the nail x

I am still processing the fact that I have cancer @Sidney78, operation to remove thyroid and lymph nodes in 2 weeks, not that I am counting or anything.  Lovely to hear that someone is free from it though, best wishes to you.

I wish you all the best with your operation and a speedy recovery. Here for you at any point of your journey x

Thank you @Sidney78 it is much appreciated.

Hi Sidney,

I was given full thyroidectomy and left and forgotten about for 7months to then be told they found papillary cancer and mets in nodules. I have been given a blood test to check thyroglobulin levels which will tell them if there is still cancer in the body.

what I don’t understand about yours and my situation is; why have they discharged and left you when others on this forum that have same diagnosis are being offered Radio iodine treatment and some have even have the support of Macmillan nurse I just don’t understand.

maybe it’s because they see us as having the ‘good cancer’

Sidney they should still be monitoring you every 6months just to make sure it doesn’t return. Let me know how things go