Hi all.
Just had a phone call from nuclear medicine nurse telling me I am booked in for my RAI treatment on 23rd of June. Exactly 2 months after my thyroid removal and neck dissection. I have read all about that treatment but it seems that Royal Liverpool has really liberal rules as it comes to that treatment. I do not have to go on low iodine diet at all as she said that studies showed there is no difference in the end results. Also I can take with me whatever I want and they will not keep anything in. They will not wrap my items in nothing and will only wipe them before I leave. On one hand I am happy that it will be quite straightforward one night stay. But on the other hand I am stressing a bit that maybe the treatment will be compromised if I will not go on low iodine diet?
Did any of you had RAI without that diet?
Thanks a lot for all the suport. Means a lot.
It can seem really tempting to do the diet even if the hospital says you don't need to. I think it's partly because we feel like there's nothing about the whole TC experience that's actually under our control and influence and then along comes a diet and we can get obsessive about trying to be the BEST at doing it.
It's also easy to think "Yes, but.... lots of hospitals DO still ask you to do it so what if they are right and Liverpool is wrong?"
Truth is, we'll never know what might have been different if we did or didn't do something.
If it makes you feel better, just ease off the big iodine sources - stay away from the sushi bar, don't go crazy with eating seaweed, and watch out for the red cough mixture. Or, if you don't want to, don't do any of it.
I'm sure you'll be fine whichever way you go.
When I was going through this 11 years ago, we would get practically hysterical trying to follow a ridiculously undefined diet. People would work to a US-based LID which was totally unnecessary in many other countries, folk were lying awake at night stressing over whether their bagged salad had been washed in iodine and which state their potatoes came from. It was a massive source of unhelpful stress for everybody.
Best wishes
Barbara
“Scars are tattoos with better stories.” – Anonymous
Hi Barbara. Thanks for your reply. Once again you have made me less worried. None of the things you have mentioned above is in my diet. I actually hate seafood so very easy to stay away :)
I will just do what needs doing and will try not to overthink this.
Take care.
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