Thy3f watch and wait

Hi Flamingolady

I can understand why you're anxious about what your team are watching and waiting for and whether this will ever change. I can't help with that specific question but I noticed that your post hadn't had any replies yet. While you're waiting, if you type 'thy3f watch and wait' into the search bar at the top of the page you'll find lots of posts on this topic. You could have a look through those and respond to any of the posters if you think they might be able to help you further.

You could also post this question in the ask a nurse section of the community and one of the specialist nurses will aim to reply within 2 working days.

Wishing you all the best

x

Would an admin PLEASE tell me why it’s so bloody hard to find the forums these days and so hard to actually type a response. Seriously, I’m getting really fed up having to battle this website’s bugs.

Sorry for that aside.

You are well informed. If it’s indeed a follicular TC, the only way to ever confirm is to get the lump out. Watching and waiting can only be a ‘Let’s see if it gets so big that we have to whip it out’ approach. Mine was a 7 cm lump so no watch and wait on that as it was squashing my windpipe.

Given the Covid concerns, I think you’re right to not push it, but next time you see the docs demand an answer to your question about what they’re watching and waiting for it to do.

My sister had a Thy3f about a year or two after my surgery. Hers turned out to be completely benign (or as she put it, just a boring old lump) and she’d never have known it was OK if they’d not insisted on surgery because of my situation.

Hi barbaral

I'm not an 'admin' but I noticed you'd said you were having problems finding groups and replying. 

There are various ways to locate your groups but the easiest way that I've found is after logging in, scroll down the home page and listed after 'community conversations' should be all the groups that you belong to. Then click on whichever one you want to look in. 

You can also access them from your profile after selecting 'groups' which you should see along the top of the screen, if you're using a laptop, or under the 'more' tab if you're accessing the community from a phone.

What problems are you having when typing a response and I'll see if I can help?

Take care

x

When I start to type a response, it only puts a single letter on each line. I mostly have to go to Word, type up a reply and then copy paste it in. Most of the time this happens. It's deeply annoying.

That's really oddbarbaral and I can understand how frustrating it must be. I've heard of a few glitches but not that one so can't help any further I'm afraid. If you're able to take a screen shot when this happens next you could then forward it to community@macmillan.org.uk along with details like what type of device you're using, operating system, etc and the 'tech' team can look into it.

Have a good weekend

x

No advice really but empathy with the worry of all of this.

Consultants are usually following national guidelines so whatever they have decided or recommended is likely to be in line with these (which change all the time as new research findings are incorporated).

If your lump hasn't got any bigger that seems, to me, like a positive sign. Mine increased by 0.5cm (from 2.5cm to 3cm) between being found (Nov 2019) and when I had it removed (January 2020).