Trying not to panic :(

No advice as I am very new to all of this (hurthle cell diagnosed just a couple of weeks ago) but sending solidarity and good wishes.

LG

Heya Marie,

Welcome back, though I'm sorry you need to pop back! It's still nice to see you again. lol

Thyroxine is a very temperamental drug that will go into a wee hufty with just about anything different that happens. It's why you need to give it special treatment when you're taking it. So when you wake up, first thing to do is take your thyroxine with some tepid water. Nothing too hot, nothing too cold, and def nothing with dairy in it, it doesn't like any of that. Then you need to wait at least 30 mins, 60 is better, before you take any other medication or eat/drink anything else. If I remember correctly, Propranolol is a beta blocker? I'm on Bisoprolol, and I take it at lunchtime to give the thyroxine the space it needs to do it's thing.

But to be honest, sometimes your body just decides it needs more/less thyroxine, and so your meds need to be tweaked a little. It could be that you've had a wee hormone change of some sort, and that's thrown things out of whack. You might have lost/gained some weight which again will throw things off. Even just a few lbs of difference can alter what your body needs. Usually, if you lose weight then you need less thyroxine, and if you gain weight then you need more. I've lost weight, and they've had to put my dose up. Go figure! lol

So your bloods going a bit wonky and yur dose needing tweaked isn't anything to stress out over. I'm afraid this is all normal and par for the course when you're on thyroxine. You've just been lucky that you managed 6 years on the same dose and no tweaks needed!

Oh, and remember, if you do change your dose then make sure and get your bloods done at least 8 weeks after so they can see what difference it's made.

Shout anytime, we're always here!

Lass

xx

Thank you LG x

Thanks Lass, that is reassuring.  It just freaked me out as she said my levels going up could be a sign of recurrence xx

Heya, 

Not that I'm aware of?

If your TG rose then that would be a sign of recurrence. Or if your TSH rises then it might cause a recurrence. But I've not heard that your TSH rising/T4 declining might be a sign of recurrence, because scientifically, with how your body works and how those hormones interact/react, etc, that doesn't make sense.

Lass

Xx

I don’t think I explained myself sorry, she said my TG has rose.  I still find it all very confusing xx

My letter should be coming through in the next few days so hopefully I can understand things a bit better then :/ 

Ahhh k. Yes, it seemed like you were saying your TSH had risen, sorry! 

Ideally, what you want to know is what did your blood tests show your TSH, T4, and TG at last time. Then what do the latest tests show them at. This is important, because there is a correlation with your TG and TSH. So if your TSH goes up, then your TG will go up.

To give you a very basic explanation of how..... TSH is thyroid stimulating hormone. When these levels are low, then it 'puts to sleep' some/all of the thyroid cells that are left in your body. The thyroid cells are what produce TG, thyroglobulin, so if they're 'asleep' then they can't produce it and the TG levels go down. Vice versa, if your TSH levels go up, then it 'wakes up' those remaining thyroid cells and your TG levels go up.

So if your TSH has gone up, then it's to be expected that your TG might also rise. If you increase your thyroxine, or T4, then your TSH will go down. If your TG goes down as your TSH goes down, then that's all good and it's just about the hormone balance in your body. If your TG stays up as your TSH goes down, then it needs some further investigating.

This is why we suggest to people they keep track of their blood results. It means if something like this happens you can ask for the numbers and either know yourself, or double check here, if it's something to be concerned about or not. 

I hope that the above helped you a little bit, and my fingers are crossed that the letter puts you at ease and the medication routine brings everything back in line. And remember, we're always here to chat to anytime you like/need about anything at all!

Lass

Xx

Thanks for your reply, really appreciate it.  Hoping my letter will arrive tomorrow so I can try and make some sense of the numbers !  That explanation helps so thanks again.  Fingers crossed ! Xx