Trying to keep positive but it’s difficult.

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So my body still isn’t behaving.

Two weeks till I see my thyroid surgeon (20th March)and discuss the suspicious nodule on the other side, expected an appointment for an ultrasound before seeing him, but that hasn’t happened, so assuming that will happen at a later date.

Finally got a print out of my Osteoporosis results only to find it’s in my lower spine and that I’m at high risk of fracture with degeneration of the spine.

Back to eye clinic, been diagnosed with a pretty rare condition called Parinaud Syndrome. I was told that a reason should have showed up in the MRI but it was clear. Been referred to neurologist now,  who will have to investigate further to find the cause.

I seem to be collecting conditions

just having a bit of a moan, thanks for listening. 

  • Hello again! 

    Welcome to my club of multiple conditions! Where all conditions are welcome, so long as there's more than one! Lol

    I'd give the ultrasound booking people a ring tomorrow, see if you're on the list for an appointment and say you'd like it ASAP so that you can get the results at your onc appointment. Can't hurt to ask. 

    I've got degeneration in my lower spine too. How are your calcium levels? Have they told you to increase them to try and help protect your spine? They did that with my Gran.

    If no reason showed in the MRI, are they sure it's that syndrome? I guess the neurologist will help figure that one out in time.

    Lots of fun eh! Having a moan and getting it out often helps, so I hope it did. If not, a nice glass of whatever you like to drink at just the right temperature, and something silly on the TV often does it for me. 

    Chin up, plod on, hunt that smile, and know we're always here! 

    Lass

    Xx

    I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.

  • You can sometimes feel like you're nobody round here if you haven't got a 'syndrome'.

    I haven't. 

    Not as far as I know.

    I'm feeling like I'm letting the side down. I'm going to have to invent a syndrome for myself.

    Best wishes

    Barbara

    “Scars are tattoos with better stories.” – Anonymous

  • Maybe being 'normal' is a syndrome in and of itself?

    ;)

    Lass

    xx

    I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.

  • You both managed to make me smileGrinning 

    I am on calcium and vitamin d since my osteoporosis diagnosis, so hoping that will help and I am considering the bone density drugs. Will try and phone to see if my ultrasound is soon. 

    If you know how to catch normal syndrome, then I’ll have that one pleaseJoy 

    Have a great weekend all xx

    Oban 17

  • Heya, 

    How did calling the bookings line go? How are you feeling? 

    Lass

    Xx

    I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.

  • Hi Lass

    Still in limbo with ultrasound, after a lot of phoning different departments I find my ultrasound is ten days after I see my surgeon. So I’ve contacted him indirectly, the lady I spoke to has emailed him, I’ve asked X-ray  if the ultrasound can be squeezed in before I see him, although whether the results will be ready, who knows. Still waiting to hear from them and my appointment is on Friday! 

    As far as how I’m feeling. If I’m honest, pretty awful, I’ve got some none health related issues and I’m trying to deal with that while my body is falling to bits and sometimes I just feel like I’m keeping my head above water. I keep myself busy and much as I feel like pulling the duvet over my head and giving up, I get up each day and just keep going, but it’s not easy. 

    Thanks for listening to my moans again

    Oban 17

  • How's it going Mrs?

    Lass

    xx

    I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.

  • Sorry Lass that I didn’t reply, didn’t really know what to say. As far as my thyroid goes, everything has been postponed, so waiting till all this is over to get my ultrasound and check what’s going on in my remaining side. As far as my eye problems go, been  referred to a neurologist, also postponed, problem is getting worse, but just learning to live with it and will hopefully turn out to be nothing. 

    My personal problems haven’t improved I’m afraid and I don’t feel able to talk about them on here, but let’s just say I am just hanging in there and no more. I’m devastated with what’s going on and I don’t know if things will ever be the same.

    I hope everyone is keeping well in these difficult times.

    Take Care 

    Oban 17