Feel awful after thyroid meds lowered

FormerMember
FormerMember
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Hi everyone, I’m new here today. I had a TT 8 years ago due to Papillary thyroid cancer . I am one of the lucky ones who hasn’t suffered much since, I have been on 100mcg of levothyroxine daily and always felt pretty good, but in January at my annual appointment , my consultant said I was slightly over medicated and lowered my dose to 100 mcg one day then 75 the next. Since then I have felt shocking! I have brain fog, very tired, feeling cold, sore knees and ankles, and feel an emotional wreck, crying all the time. I’m wondering if any if you have experienced this with being perhaps under medicated? I really am struggling. Thank you all in advance. X

  • Do you know what your blood test results were on 100 mcg, please?

    And how many weeks is it now since you changed your dose?

    Best wishes

    Barbara

    “Scars are tattoos with better stories.” – Anonymous

  • FormerMember
    FormerMember in reply to barbaral

    The only thing I know is it was showing I was over medicated? X

  • Heya Slinky, 

    Always good to get your numbers so that you know yourself where you feel good and where you don't. The dose isn't accurate enough to keep track of for that purpose. Also, always make sure you know what TSH suppression level your doctors are aiming to keep you at. 

    Also, as Barbaral asked, how many weeks has it been since you changed your dose? And how many weeks after changing your dose did you start to feel odd?

    She's asking because T4 is a storage hormone, so it sits in your body for a while until it is needed. This means that after a dose change, you wouldn't start feeling any different until a good 6 weeks after you changed your dose. Because that's how long it takes for your levels to start adjusting.

    If it has been at least 6 weeks since you changed your dose, though 8 weeks would be better, then get an appointment with a nurse at your GP office to have your bloods done. This will then show what difference the dose change has made, but don't let your GP change your dose, just let your consultant know the numbers and they'll advise.

    It might be worth getting your vitamin D levels checked too. Because all of the things you mentioned come with low vitamin D levels too. 

    Lass

    Xx

    I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.