Unexpected discovery in surgery, please help.

FormerMember
FormerMember
  • 4 replies
  • 26 subscribers
  • 4118 views

I had some lymph nodes on the back of my neck which were enlarged and I went to the doctor for them, they sent me for a scan and they said the lymph nodes look ok but they found a 2cm module on the right side of my thyroid which was classed as u4 and the biopsy was inconclusive. 

I had my surgery yesterday to remove the right side of my thyroid but I have just seen my surgeon and she said there were some unexpected discoveries once she opened me up, apparently attached to my thyroid was some fatty pink tissue at the bottom of the thyroid so she removed that but she said behind the left side of my thyroid, near my collar bone was another lump which looked like lymph tissue, I lost one of my parathyroid glands too. 

Now I am worried the lymph in my neck are actually all have cancer, and the initial ‘we will remove the right side lump and that will be that’ and now it’s changed again, she doesn’t know what the outcome will be now, she said even if it has spread to the lymph the prognosis is still good, but I’m worried so much.

any help or advice will be great x

  • FormerMember
    FormerMember

    Sorry can’t give you any help or advice, but am thinking of you. I think the waiting is the worst part!

  • Hey there Cat,

    Welcome to the forum, though I'm sorry you have to find yourself here.

    What you've had is called a diagnostic hemithyroidectomy. It's what they do sometimes when they get a T3 result on the FNA. However, this does mean that when they're going in, they don't know what they're going in to see. So everything and anything they find is technically unexpected. They should have also explained that if they found anything, then there would be the possibility that they'd have to operate again to remove the other half and/or some lymph nodes. So the plan hasn't changed because it was an investigative operation and what they found would determine any next steps that needed to be taken.

    Whatever the tissues are that they've found have been removed and are off to the lab to be tested, so they're in the best place for you. It'll take a few weeks, probably, but then the results will come back and let you know what's going on in there. They'll have a good look at the lump to see what it is, and the good news is that 90% of thyroid lumps come back as benign. For whatever reason, thyroids just like to throw up lumps, especially when women are extra hormonal (puberty, pregnancy, menopause, etc).

    As your Dr said, even if it comes back as cancer, and even if it's spread to the lymph nodes - this generally doesn't change the prognosis at all. It's still treated exactly the same as if it had been contained within the lump, and usually everyone is completely fine.

    Hope that helps,

    Lass

    xx

    I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.

  • FormerMember
    FormerMember in reply to Lass

    Thank you. You don’t understand how much this reply meant to me. Thank you x

  • Not a problem at all.

    Please do shout up if you've any questions, concerns, or worries at all. We're always here to help where we can!

    Lass

    xx

    I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.