hyalinizing trebacular tumor,

Hey Bev,

I'm afraid that's a new one on me. So I think the best idea is to tag in to see if she can give you any more information on it.

Sorry I couldn't have been more help.

Lass

Xx

Hi Bev202,

I've not heard of that type of thyroid tumor, so can't be much help I'm affraid. I just had classic Papillary TC diagnosed after my hemi.

Perhaps one of the longer forum members may be able to help. Either Lass or Barbara. I can't tag them for some reason.

I would Hazard that you'd have have either a hemi or a total thyroidectomy. Have you had any treatment at present?

All the best

Chris

Hi , tagging seems to be one of the many things that's a bit iffy today.

Hi , I can't claim any experience or knowledge but a bit of judicious googling suggests that HTT might not actually be cancerous - could be benign in which case you may well be left on watch and wait.

This bit is quite interesting "HTT is misdiagnosed almost uniformly in FNAC specimens because of the confusing similarity of its nuclear features to those of PTC and the presence of a misleading hyaline material that mimics amyloid, often being misdiagnosed as MTC."

So quite possibly if the docs say that it is HTT, you might want to ask for a second opinion since it sounds like it's a tricky one to get right.

Hi  and thank you to @lass for tagging me in this post.

A big thank you to barbaral , your judicious googling is pretty accurate.

HTT is very rare, and quite controversial. Not all doctors agree on whether this is actually a cancer or not.

Some pathologists would consider this a benign tumour (i.e. not cancer). Others would class it as a cancer with very little potential to grow and spread, or a variant of classic papillary thyroid cancer.

Your team may send it for review with another pathologist. However, this may or may not be required, and will depend on the experience and expertise of your hospital pathology team.

I remember from your last post that your growth was very small at 10mm x12mm. If it was complete encapsulated and you’ve had it removed then you may not need any further treatment.

Hopefully your team will come back to you soon with recommendations of what they think should happen next.

Please get back to us if we can help any further.

Geri

Thyroid Cancer Information Nurse

thank you Geri

The consultant appeared somewhat phased by the page and a half of pathology and he had only just got off the phone to another hospital,  am going back this week - fingers crossed 

Hi Barbara

thank you for your response ,   I have to go back this week,  as pathology report extensive and they are consulting with another hospital regarding the results.  remaining hopeful though

many thanks

Hi Gridster

thank you for your response,   yes I have had a hemi - three weeks post op. seeing consultant again next week and hopefully will know more.

again many thanks

Hi Lass,

thank you for your response,  after which I was motivated to look at your profile, and was so sorry to see how much you have been through,  I totally get the humour angle.......

 Your histology really made me think about my own situation and has really helped me to focus my mind on what I need to do and made me think  that I definitely  need to be more pro-active in asking questions, 

There are things happening with my body and I'm not sure anymore that its not all connected in some way.    as I am also on my third lipoma,  am undergoing tests for an enlarged liver which I am not due to see consultant until the end of August.  I have terrible pain in my right rib cage, that I had prviously been told is possibly down to arthritis,  and I have an adrenal adenoma that has been sitting there for years. 

Your experience has most certainly got me writing down questions ready for my next meeting with consultant, and I will be asking for a body scan.   do you think I would get one under the circumstances?

All the best of luck to you  on your continued journey 

rgds

xx

Hey there Bev,

Yup, I'm a very special snowflake. Lol

Regarding the lipoma, apparently by the time you're 40, people will on average have 6 lipoma. So having 3 isn't unusual at all, or worrying.

I doubt you'll get a full body scan, because from my limited knowledge - none of those things are linked together as symptoms of an umbrella problem. Sounds to me more like you need to go to your GP for a double appointment to ask about the rib pain to get a proper diagnosis of arthritis or not. Seems an odd place for arthritis to me, but I have 0 medical training. And I presume the adenoma came back as benign when it was tested?

But yeh, I wouldn't get your hopes up about a full body scan because I think that's a bit of a reach with what you've told us here. But you never know what the consultant will say, and def no harm in asking.

Lass

Xx

Hello, I hope it's ok to ask the question here? I found this post because I am trying to understand my report which says I have a well defined, partly encapsulated follicular tumour, with a solid, trabecular and follicular architecture with no nuclear atypical. In the report it doesn't say hyalinizing but when I've looked up solid trabecular and follicular cancer this comes up. I am trying to understand if my report means I have the HTT type too? Thank you