Starting on Nebido

Hi Jon,

I hope the nebido goes well for you, I tried it for a year, and now use tostran or testogel depending on availability.

Nebido thoughts:

- yes a practice nurse can inject it, into the upper bum is the normal site

- its a 4ml injection, they need to go slow..... almost up to a minute to inject it all

- its quite thick, so if its been stored cold its not going to very comfortable going in - ask if you can hold it in your hands for a few minutes before the nurse draws it into the syringe

- on the day, no real side effects other than a dead-leg feeling. I used to cycle to and from my injections

- you'll start on 12 weeks intervals BUT MAKE SURE YOU GET THE BOOSTER INJECTION AT 6 WEEKS (just another vial injected)

- if blood tests show you are running out of testosterone before the next injection they can shorten the interval

Longer side effects - you may find that you peak too high at the start of a cycle, or drop too low at the end. This can mean you feel worse at times.

My advice is stick with what you know for the holiday IF where you going is going to let you bring in the sachets/pump (take your prescription, take only what you'll use). One nice thing about nebido is not carrying the treatment though customs.

Greg

Hi 

Hopefully a quick one. After months of low levels on the testogel pump (which I now see that a lot of you are struggling with)- I decided to give nebido a try. I had my first injection 3 weeks ago and I used the advice Greg supplied and told the nurse to inject it very slowly. She didn’t know a lot about it but was very willing to work with me and get it right. It was painful going in and a few days after but generally I think I’m feeling ok- mood seems to be fine compared with when I was on the pumps. Just a question. 1 week after the injection a lump appeared at the injection site which has since got bigger and very itchy. About the size of a ping pong ball. Anyone have experience of this? Anything to be worried about? I have read online that people call it a butt egg and it is common, but normally appears immediately after the injection and goes away quickly. Others have had issues with the nurse not administering it properly and others have been allergic to one of the ingredients in nebido. Any advice is really appreciated.

Many thanks

Jon 

Hi Jon,

Sorry, I'm no expert on butt eggs and I'm NOT going to google that on my work computer...

I do think it worth getting the lump looked at, especially as its occured a while after , just to check for infection.

Another tip to reduce the pain is to warm the nebido in your hands for a good minute. Chances are in its been in a fridge and it'll be like injecting molasses with a lot of syringe force if not warmed up. Just a minute warming it makes it runny.

Greg

Hi all

just a quick question. Im 30 years old and had my ffirst nebido injection 9 weeks ago (I have had both right and left testicles removed in the last 2 years). I have got on better on nebido than testogel pumps but have been struggling a lot off and on with constipation the past 3 weeks. Have you ever heard of stomach issues being related to this type of TRT before? Also I’m feeling pretty rubbish- legs heavy, pins and needles in hands, can’t get enough sleep, lethargic, my level was 14 (at 9am) two weeks ago, so I’m wondering if it is starting to drop further?? Don’t want to assume, but this is what I have heard happens to most people on nebido. 

Any thoughts welcome....

Thanks as always 

Jon

Hi Jon,

Something I'd say from your post  "Had my first nebido injection 9 weeks ago..."   - when you start nebido your're meant to get a 2n injection 6 weeks in, otherwise you won't have enough testosterone and you'll feel really awful towards the end of the cycle. Guess what, you feel awful.

So, you won't have a stable level of testosterone yet. You need to speak to your endo/GP about when the next dose can be administered.

G.

Thanks for the advice Greg. I have my next injection next week so hopefully that will help. Funny, I had read up on nebido quite a bit before I started and had noted the 6 week booster that I saw you mention (and others too) on this blog. I mentioned this to my GP, my  nurse and then to my oncologist last week but they all said they had never heard of any need for that, so I didn’t push it any further. Still on a 2 year waiting list for an endo, so I will speak to my GP this week and see and hopefully the next week injection will help.

thanks

jon 

Hi,

I guess that's why we have specialists, they can't know everything, but the upshot is you feel rough. The information is on the leaflet in the box I think - I'll go check...

G.

Yep, its in the instructions in the box - did the nurse give you the leaflet or did they bin it?

G.

very good informative thread, great information Greg.

My urologist said I should consider injections and he wrote to my doctor saying the exact same as you, 2nd injection exactly 6 weeks after first, then blood tests at the 9 - 10 week stage to decide if further injections should be at the 12 week stage or 10 week stage.

.

I am off on holiday in 2 weeks time, when home I may consider a trail year on injections with the option of returning to testogel.

.