Post Orchiedectomy Recovery

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Hi all,

Currently 3 days post orchidectomy surgery to remove the left one and wanted to share what I’m going through and see how recovery was for others.

I’m 25 and in great health, playing football and regularly going to the gym and running. Start of August I found a pea sized lump on the left side, got my partner to have a feel as well and we both were immediately thinking the worst (which helped us take things in our stride down the line).

I immediately booked a GP appointment which was for 2 weeks time, after 2 days the worrying and waiting was too much and I requested a more urgent appointment and was seen the next day and referred for an ultrasound on the 16th.

I was referred to a Urologist and saw them 3 days later where it felt like a few steps were skipped and we were talking surgery and potentially chemo following a CT scan which I would have before or after surgery.

After bloods (which were clear) and pre-op I was in for surgery 8 days after the urology appt and 2 weeks after my first GP appt (NHS pathway has been amazing!)

Surgery went well and I was out the same day but in a lot of pain, and continue to be so now. Slowly becoming more mobile but even getting in and out of bed is a chore. Hoping this nightmare is over now, but still got a CT scan to come and potential chemo/radio if anything is found.

I wanted to get insight from people on how they found recovering post surgery, showering, changing dressing, accepting the uniball life and beyond.

Thanks all.

S

  • Hi Stu

    Welcome to the club you would rather not have joined!  You will get through it and it will all fade in time.  I am about 1.5 years out now so in my 5 yr surveillance etc.

    I think the other guys have covered most of the bits I would have said….   The first couple/ few weeks are a whirlwind as I recall.   A few thought from me below….    I found this place so helpful in the early stages and like one of the guys said up there I try to give a bit back if possible.

    I had some bloods done when I saw the Urologist but after he said it was a “sinister mass” he was looking in his diary” for an op date….  Our condition means it “ has to go” which seemed to overtake all the other stuff. 

    My tumour  (Terry) Grinning was 37mm.  He got,bigger quite quickly in the weeks after I initially noticed it.  Scary times as we all know.

    I was in bed for a couple of days apart from staggering to the bathroom.  Using my arms to get out of a chair for a week maybe.   Caveat I was/am an oldie at 56 when diagnosed so probably wouldn’t bonce back like you will as a younger man.

    A cushion pressed over the wound is handy if coughing or laughing as it supports it all.   Depending on what you normally wear some close fitting boxers will help with the initial erm bruising etc!

    I recall feeling something like normal after 3-4 weeks.  I am Normally quite fit .  

    take care of yourself

    Chris

  • Hi Chris, thanks for welcoming me to the club, it’s definitely felt like a whirlwind.

    Glad you got rid of Terry! Can definitely relate to noticing it grow, although was hard to know if that was just in my head or not.

    Hopefully I bounce back but am expecting similar timescales to what you’ve described based on how these first few days have gone. The cushion tip is one I’ll have to try

    Thanks for sharing, really appreciate it.

    S

  • Hi Stu & Hew 

    I’m also a recent “one-baller.” 

    I had surgery just two days ago to remove my right testicle, and everything has happened so quickly — it’s still a lot to take in.

    I’d had a lump on my right testicle since my 20s and always had it checked regularly. But now at 38, I suddenly noticed a change in its shape and size. I booked in with my GP, had a review, and was referred for an ultrasound. That same evening after the ultrasound , the doctor called to say the scan showed a lump that looked consistent with cancer.

    Hearing that was a huge shock, especially with my 3-year-old twin girls and wanting to be there for them and my partner. Within a week I met the consultant, and the following week I was in for surgery. The whole process from first GP visit to recovery has been just 3 weeks — the speed has really surprised me.

    Recovery so far hasn’t been too bad. The bandages and supportive underwear are helping, though getting comfortable can be tricky. I haven’t really had time to fully process everything yet, but my partner has been amazing — so supportive and understanding, which has made all the difference.

    I am now waiting to hear from Bristol on if any further treatment required … but hope that’s the end of this chapter so I can move on and enjoy my time with my family . 

    One thing I’m now considering is whether to get a prosthetic testicle in the future. I’d love to hear from anyone who has gone down that route — did it help you feel more “normal,” or was it something you decided you didn’t need in order to move on?

    Thanks for reading, and I’d really appreciate any thoughts or experiences you can share.