My mother (57 yo) was diagnosed in July 2024 with a very rare and aggressive type of cancer: Monomorphic Epitheliotropic Intestinal T- cell Lymphoma ( MEITL), a subtype of non- Hodgkin lymphoma. She began treatment with CHOP chemotherapy, then moved...
I received a diagnosis of Mycosis Fungoides a few weeks ago. Early stage as I only have a few patches and therefore treatment of a steroid cream My struggle is with how to view this condition. I fell guilty if I tell people I have a form of cancer and...
Hi, my husband has been diagnosed with an extremely rare form of t-cell Lymphoma (MEITL) in May 23. He has had a really hard time since going into hospital end of April, and remains an inpatient due to the complexities of his illness. He suffered a perforated...
Hi, i was eventually diagnosed with MF 10weeks ago, I've been getting puva treatment, which commenced prior to my diagnosis.Tomorrow will be my 25th session out of 30, it's been a positive process and gave me back a sense of normality. However the...
Hi, my 13 yo son is currently in the maintenance stage of treatment for t cell lymphoblastic lymphoma. He's on a few different oral chemo drugs and a few other drugs but he has really struggled to take them so far and resorted to using an NG tube. He...
Hi Mike and thanks. ive been treated for more years than I care to remember for psoriasis and eczema, without any success. Things changed over the last year or so and raised lumps appeared which have become more evident, painful, harder to hide, biopsies...
My partner has recently been diagnosed with this rare cancer, looking for others who have had the same diagnosis to discuss treatment plans etc with
I been recently diagnosed with the above. I have planned 6 cycles of BVCHP chemotherapy. I had 5 with one to go. It's been a tough few months, processing the diagnosis, and as an aggressive type of cancer, treatment starting within a week. Just...
Hi all- I'm just wondering if anybody has a recommendation for a good lotion for CTCL. I have recently finished a course of topical steroid use and have noticed a change in my skin/ how it reacts to creams. It is less raised/ red but is drier. I used...
My partner has all the signs and symptoms of T Cell Lymphoma and the doctors believed it to be a form of skin cancer with the rashes however now due to the bloods coming back abnormal and a large decrease in his white bloods cells he is now under investigation...
