I began writing this, 2 days ago, just before then during my second round of FLOT chemotherapy for distal gastric adenocarcinoma.
I am 57 years old I was originally diagnosed a distal gastric ulcer following CT scans and two endoscopies. On the third occasion it was realised that the non-healing distal gastric ulcer was in fact cancer. I was diagnosed on 23rd March.
I had a staging laparoscopy on 3rd April which, luckily, found that the cancer hadn’t spread. I am receiving FLOT chemotherapy over 8 cycles in total with surgery to remove the cancer after cycle 4.
I need to tell my brother about my cancer as my mother has dementia and lives in a care home. However, even the thought of speaking with him and my mum trigger flashbacks in me to past experiences of trying to speak with them. They enjoy making fun - goading, teasing, gaslighting, emotional blackmail and general unkindness towards me. I was born ‘on doctors’ orders - a ‘rainbow child’ following the death of my sibling at 2 days old, 22 months previously. I lost another brother some years later to a life shortening condition. Although I have compassion and sympathy for my mum and eldest brother – this period was terrible for them too, I do not feel love for them or feel I received it. I have always felt like an outsider both within the family and in the wider world.
The memories and images create emotional and physical feelings within my body. There in an unnerving, low pitch, 'drumming' in my thorax area coming from my cancer area, "Dom ! dom ! dom", a fast beat reverberating around my upper body, reaching my ears. I feel slightly sick and wanting to cry, even affecting my will to live.
It's worth noting that the feelings reoccur as I write this now.- I'm also struggling to spell correctly - or find the right words, so it's taking a while to write !!
The cancer diagnosis yet another obstacle to climb over the last seven years (excuse the pun, I must have broken a mirror sometime in 2018)
My 16 year office ‘career’ had come to a standstill (a repeat of a 15 year office ‘career” some years earlier). I suffered multiple depressive episodes. Eventually, I was granted voluntary redundancy. At the time I was in year one of a 3-year professional diploma and planned to use the redundancy to buy me some time to retrain in a different career.
However, a week later my husband (who I helped through alcohol addiction in the past) announced that our marriage was over, he admitted adultery and he started drinking again, which, again, I supported him through, in addition to finding somewhere else to live and putting my course on hold.
In 2023 I moved into rental accommodation. Shortly after moving in my brother called, urgently in need of help with my mother who losing mental capacity and now lives in a care home. As alluded to earlier. I struggle with my family dynamic so took on the more practical side of things relating to health, welfare, financial arrangements etc.
I apologise for the long introduction to my message but I’m wondering if someone out there had experiences dealing with this sort of dilemma. Both my brother and I have lasting power of attorney however, so far, it’s just me dealing with the bills etc and my brother visiting my mum.
I live over 200 miles away and visit infrequently, which I’m happy about as I struggle massively communicating with either of them – sounds harsh but unfortunately, it’s true.
I chose not to tell my mum or my bother about my marriage breakdown, especially as the timing was close to her mental decline and my personal reasons. However now I have the additional complication of my a cancer diagnosis (which I’m dreading opening up about – up to and including them wanting to see me with my hair loss so they can laugh at me and make silly comments… and the need to somehow get my brother to come on board with the LPA requirements.
To end with something positive. I am living in a small friendly village and feel I am learning better ways to interact with others. I have a counsellor, who I pay privately as the NHS options do not cover trauma experienced in childhood. I have my dog and am determined to complete my course – although I’ve just put 2 on hold due to my cancer treatment
Hello NavigatingLife
I am Brian one of the Community Champions here on the online Community. I have just noticed your post has gone unanswered. By me replying it will be "bumped up" to the top of the page and be seen by other members of the stomach cancer group.
i have read your post a few times to take everything in. Life hasn't been easy for you and we are all different as humans. Based on what you have said - if I were you my cancer diagnosis would be mine and not for family to digest and use to their advantage - but that's my thoughts only.
On the Community we have another group you may like to join and there's a link here:
You can join this group and copy and paste your original post there. Remember the Support Line on 0808 808 00 00 (8am to 8pm 7 days a week) is also there for you,
I wish you well with your treatment going forward.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hi I’m so sorry to read about your difficult childhood but you should be proud that you have made the break. We can’t choose our family but if they add pain we have every right to distance ourselves.
You have no obligation to provide details all you need to say is due to ill health I’m no longer able to do x, y and z for the immediate future.
When I am well again I’ll be in touch but for now I need to give myself the time I need.
Remember nobody can make you feel bad unless you let them. If you don’t value their opinion what does it matter what they say about you - just think okay if that’s what they think that’s fine but I know the facts so I’m not even going to give their comments the light of day, they have no value in my life.
Dogs are very loyal and will give you lots of love. As you are in a lovely village reach out through a notice board or something saying you have cancer and are concerned you won’t be able to give your beautiful dog the 2 walks a day and wondered if anyone could help for the period when you can’t.
You’ll be surprised how many good people are out there that will not only help with the dog but could end up as friends. Just don’t be scared to ask.
I wish you all the best and that from today onwards you will appreciate your own value and how important your life is - don’t waste it on negativity. Think positive- you’ve got this.
Take care
x
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