Moving on....

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Hi

New to this forum. I was diagnosed with a poorly differentiated adenocarcinoma in June last year. Stage 2 tomorrow. Chemo started in August with Flot. First 2 rounds had me in A&E then strength reduced to 80% and I got through.

Surgery to have a partial gastrectomy in November. Ended up back in A&E again after being discharged due to severe constipation. Recovery then my mop up chemo started in Jan. Had one round at 80% strength and pretty much constant severe nausea. I'm at the top end of anti sickness you can have at home. My second round of chemo has been skipped so I can recover a bit more. If I do rounds 3/4 it will be at 50/60% strength. I still have nausea everyday even being off chemo for a couple of weeks although it's a lot more manageable. 

I've been struggling with whether or not to continue the chemo or just move straight to monitoring. My Oncologist said my first chemo had a low impact. My pathology said the tumour hadn't gone through the stomach wall and was in 1 lymphnode. 

I'm very tired. I've got 2 beautiful children who want to play with mummy. 

Was it just a given that people did the whole lot? How do you cope with the risk of reoccurrence?

Sorry, long post but I've got a week to make the decision......

Michelle x

  • Hi

    It’s such a difficult decision, you  have come through so much it can be hard to carry on. 
    I was told they would rather reduce the dose than have it stopped. 
    Every day and every dose brings you closer to the end of treatment so you are nearly there! 
    It is hard enough recovering from a gastrectomy so chemo on top is really tough! 
    Hang in there you will get through this! X

    Jac

    Life is what happens when you are making other plans!  
     
     
  • Hi Jacquiw10, thanks for responding. My brother said the same thing. Nearly there. I think my problem is no one can give any guarantees. Everything could be fine and I get to see my kids grow up or could go the other way. We lost my mother in law a couple of weeks ago to pancreatic cancer and she did all the treatment. Nothings written so i will keep going......no regrets! 

  • I was told the same thing when I had to decide whether to have chemo as I really struggled.  My surgeon said hang in there when I felt like giving up!

    You will get through this! X

    Jac

    Life is what happens when you are making other plans!  
     
     
  • Hi Michelle,

    I was also diagnosed stage 2 in March last year, poorly differentiated with signet ring cells. I did 4 flot May-June, had TG. 
    My pathology post surgery was T1N0. 
    I completed the last 4 FLOT, did one dose at 100% and reduced the other 3 to 80% as I also had the same, severe nausea. But it did seem to get easier on rounds 3/4. Although chemo had minimal affect on your main tumour, it’s impossible to measure the effect it’s had systemically, therefore I would complete the last chemos if you’re able to, plus research has shown outcomes are better for people that do complete it vs. those who don’t.

    I know it’s so hard, but you’re almost at the finish line now. Doing it at 1/2 strength is better than nothing.

    Hope this helps Heart

  • Hi Michelle, I too had it reduced to 80% on my third round due to being constantly sick which I ended up after round two in hospital on an anti sickness drive… they prescribed anti sickness tablets to take before the rest of the chemo rounds… after my TG the feeling of being sick as I couldn’t be sick continued so I had the steroids given for a couple more days after each round… this did help a wee bit… and a further % reduction… unfortunately I was told by the MacMillan nurse before I started if I had suffered from either travel or morning sickness (which I did with both my pregnancies) that I would unfortunately suffer with nausea right through chemo… in my head I wanted to quit the chemo as I had enough but in my heart for myself and family I had to finish all rounds… 

    I had stage 4 signet ring and there was no evidence of cells in my lymph nodes after my surgery but I was advised to continue with the ‘Mop up’ as they call it for the last four rounds… my oncologist was very good and tried her hardest to make it easy for me and she was unsure on my seventh that I would have my eighth round as my liver blood results were not good… I thought YES it’s going to stop finally but I was subconsciously thinking what ‘ifs’ with not having the last one… anyway after my last bloods being taken, she phoned up and said the results had improved so I was ok to have the last one… 

    Please consider to continue as you might then self doubt yourself about not having done so… keep positive once it’s over then you can start to rebuild and recover for yourself and family… 

    Take care 

    Michele 

  • Thanks Chloe, I'm feeling stronger each day although thr days are still up & down with waves of nausea. I think I've decided to complete the next lots. As you say, no one can tell what's going on inside so can but try. 

  • Thanks Michele. Going to keep going as I am feeling better. As you say, the thought of it being over is the light at the end of the tunnel and I don't want to look back and regret my choices.