Hey I check in on here when I can, I just wanted to come back on and do a post as I can see there’s lots of new people struggling with various things like weight loss, eating troubles and just been diagnosed/waiting for tests etc. I was 28 and diagnosed...
I was initially diagnosed with a GIST in the jejunum part of my small bowel in Jan 2024, and had this removed in Feb 2024. It is a wild type GIST with no known cure so surgery and ongoing monitoring was the plan. Sadly in November 2024 I received the...
Hi all, Just over 3 weeks ago, my 55yo husband had a total gastrectomy, splenectomy and part of the pancreas and part of the liver ended up needing to go too. Initially he was great, unfortunately he’s had multiple complications: anastomosis leak...
I was diagnosed with stomach cancer on March 1st 2025 and had 4 cycles of FLOT chemo before i had a total gastrectomy on August 15th 2025. I’ve been very poorly since the op but I’m slowly regaining strength. I’m having problems with dumping even though...
Hello again. Im seeking advice on supplements required after a total gastrectomy. The dietician at the Royal Marsden has told me that over the counter multivitamins, like Centrum are all that is needed and advised bariatric supplements are not required...
I just wanted to post this for all you out there that have been diagnosed with this rare form of cancer Linitis Plastica and I'm cancer free now. I was diagnosed 18 months ago. The gastro doctor thought it was gastritis when he did a endoscopy but he...
Hi everyone, I am 39 years old female, was diagnosed with stomach cancer day before yesterday. I am worried about the wait time. I have a EUS scan on Wednesday next week, and waiting for PET scan before the doctors can tell me treatment plan. Can...
Hello All My mother has been diagnosed with Linitis Plastica T4A N2 M1. All CT PET and ultrasound of thyroid, liver and lungs were clear. However when a laparoscopy was carried out a nodule/white spot was found on the Peritoneum and cytology washings...
Hi all, Im hoping to get some advice from the group based on people's experience. I was diagnosed with gastric adenocarcinoma in early April 2025. So far I have completed my first 4 rounds of FLOT chemo and had my total gastrectomy on 24 July 2025....
Hi all, I'll be 6 weeks post TG on Thursday (4 Sep) and doing reasonably well. Im getting frustrated and anxious about how I'm able to fit in enough calories throughout the day. It's frustrating and I can't see how I'm ever going to be able to live...
