Oesophageal Stent

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Has anyone had an oesphageal stent fitted and how have they found eating with it in place, what sorts of foods can be eaten and how does it affect swallowing. Your experiences would be welcome, hopefully more positive than negative.  I understand that following the procedure it will be a soft food diet and that care needs to be taken.

I have a tumor at the junction of the oesphageus and stomach which was treated with FLOT chemotherapy 2 years ago.  It is non operable but stable.  The past 12 months the scar tissue had made the opening into the stomach smaller - 8mm - which is making swallowing anything other than liquid type foods impossible and even liquid types can be  difficult and uncomfortable.  3 weeks ago I had had a balloon dilation to increase the opening to 12mm but it hasn't helped a lot.  The surgeon said if the dilation didn't help sufficiently then a stent would have to be put in place, which will be the next stage.  I have been given all the information about stents, spoken to the Macmillan nurses at the hospital, all has been helpful but not particularly positive and has made me apprehensive.  I am just wanting to hear from someone who has one in place, has found it manageable and a help.  I need some positive news about stents to reassure me this is going to be beneficial.  At the moment I am struggling a lot swallowing and eating, not eating much and loosing weight, so anything has to helpful.  I appreciate your comments.

  • So sorry to hear that, Have you joined Oesophageal cancer and caregivers uk, it’s on face book and a private group. I’ve just looked and there is some questions about a Oesophagus stent. Or on MacMillan Oesophagus site there may be some questions. I’m only on it as I thought that’s what my husband had to start with, his was in the same place as yours. Hope you find some hope for the stent x

    Sue Xx
  • Sue, Many thanks for your response and positive suggestions.  I will investigate both and see what I can find.  I appreciate your help.

  • I had one fitted mid December and followed the liquid diet for a while.  Several days I just couldn't face trying to eat at all so swallowed only what I fancied which was plain yogurt and ice cream!  Gradually I tried to introduce more, starting with soups.  Then sweeter stuff like custard.  I don't have a sweet tooth.  Quaker oats with lots of milk worked for me.  I am still struggling but beginning to make progress.  The main problem I have is intermittent pain im the middle of my chest.

  • Thank you, that's really helpful.  I'm sure it will take a while to get past the soup and soft food stage especially as I havn't been eating much for months.  I'm sure it will take time to build up appetite and amount that I can eat, especially as I have no interest in food or eating.  I'm resigned to having it now as it is the last option and it's got to be better than struggling as I am at the moment.