Linitis Plastica Diagnosis

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Hello All

My mother has been diagnosed with Linitis Plastica T4A N2 M1. All CT PET and ultrasound of thyroid, liver and lungs were clear. However when a laparoscopy was carried out a nodule/white spot was found on the Peritoneum and cytology washings came back positive.

She has had symptoms of reflux, very small appetite, and sometimes needing to vomit if she has too much since September but is generally well in herself. However, after the stage 4 diagnosis she is feeling defeated.

They have said because of the spread, it is inoperable, we were initially told that it was curable and they could take the full stomach out.

She has a meeting with oncologist 13th Jan to discuss palliative chemo. It all seems to be going a bit slow, and doctors have gone from optimistic to not much they can do.

I have read through some previous posts on similar situations and wondering on outcomes or recommendations, going private, trials etc? How well did chemo work for a similar situation?

Any info or help is much appreciated, as you can imagine we are all absolutely heartbroken, as it’s come so out of the blue. Thanks

  • Hi

    Thank you for the links! I’ll be sure to check them out. 

    Very happy to hear you are able to restart with chemotherapy treatment. How are you feeling overall?

    Sending positive thoughts x Slight smile