cold dysesthesia

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  • Hi , I am starting my chemo on Wednesday for my stomach and Peritonial  cancer and one of the symptoms I was advised about was cold dysesthesia  or a extreme sensitivity to cold ,either the environment or substances foods and drinks ..I have checked this side effect out and seen a report that sucking or chewing on ice whilst having the chemo  can help prevent or minimise this effect, has anyone experienced this or tried it ....I will really miss a nice cold , ice cold coke or beer , not to mention ice cream lol. 
  • Hi, I have just finished all treatment, I have kept away from the cold stuff throughout, it can get painful if you have it. Also I have kept away from any fizzy drinks.

    good luck !

  • Hi, my cold sensitivity went away after about 7 days after chemo! Then it returned again next cycle. I still had cold stuff just waited a week or so after the cycle x 

  • That’s the same as mine, I have it after every infusion then it eases after the first week

    i was informed my my oncologist that I’m now going to receive immunotherapy to run alongside my chemotherapy, has anyone got an on-site to the treatment?

    currently laid up with an extremely painful bad back and struggling to move it’s so dam frustrating 

  • Thanks for reply , my immunotherapy is running alongside my chemo as well , I know it could be rough but what have I got to lose , it's just a shame that other people don't realise I could feel like sh@t , even now I am in a bit of discomfort  and just don't feel like doing much except sitting around, but still I am not expected to take it easy , I know they say families are there to help , but mine are a bunch of ignorants ..I have 4 ounger siblings,  only one has enquired on how I am , even my own father doesn't like it because I won't pick up a paint brush , he even complains when I sit and talk to my mum . However my children are a godsend  doing what they can ..am I expecting to much not after sympathy just a little acknowledgement...

    Sorry if this has turned into a emotional rant but just had to let out some feelings whether right or wrong ..

  • Sometimes you need to have a blow out, nothing wrong with that at all 

  • Rant all you like, everyone on here is there to support you and understands what it’s like to be told that you have cancer