Follow up after treatment

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I finished my treatment in July this year, o had the standard, 4 FLOT, total gastrectomy, 4 FLOT. Now I see my surgical team every 3 months, but all they do is blood tests for tumor markers, CEA and CA199. As these were low when I was first diagnosed with stomach cancer, should I push my team for more tests? They are planning to do a CT scan in May. I just had my first test done, markers are very low, but I am not reassured. I am overwhelmed with anxiety about the cancer coming back. 

  • Hi, I finished my FLOT in July as well after surgery, I had some discomfort and horrendous diarrhoea my team organised a gastroscopy which was fine and I had a Contrast CT last week, I haven’t had any blood tests done. I am feeling a lot better now, it’s difficult to stop thinking that the cancer has come back, I’m sure your team know what they are doing, I appreciate it’s sometimes difficult to control anxiety, take care x

  • I appreciate your response, it is so difficult not to overthink and worry. 

  • Your post struck a chord with me! The fear of cancer is hard to cope with! I have read this article by Dr Peter Harvey many times.

    https://workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

    Every ache and pain causes real anxiety. I think of it like this!

    You know the phrase, I’ll see you tomorrow if I don’t get run over by a bus!  If you are diagnosed with cancer, you have been in the middle of the road with the bus coming towards you! 
    Afterwards you often find yourself at the bus stop watching for the bus! 
    So I work hard not to waste time at the bus stop! 

    Jac

    Life is what happens when you are making other plans!  
     
     
  • Do you have only surgical follow ups, no clinical oncologist that you can ask for this scan? My husband is stuck between two hospitals, surgical team in one, oncology in the other, and they can’t see each other’s records, which is a completely different story.